Faculty of Physical Therapy and Rehabilitation, Hacettepe University, Altındağ, 06100, Ankara, Turkey.
Department of Pediatric Surgery, Faculty of Medicine, Hacettepe University, Ankara, Turkey.
Dysphagia. 2020 Jun;35(3):438-442. doi: 10.1007/s00455-019-10046-5. Epub 2019 Aug 13.
The study aimed to assess concerns of caregivers of children with EA-TEF related to feeding-swallowing difficulties, compare the concerns according to type of atresia and repair time, and investigate its relationship with time to start oral feeding. Caregivers accompanying 64 children with EA-TEF were included. Age, sex, type of atresia, repair time, and time to start oral feeding were noted. Parents completed the Turkish version of the Feeding/Swallowing Impact Survey (T-FS-IS) to assess the concerns of caregivers related to feeding-swallowing difficulties. The T-FS-IS has three subscales including daily activities, worry, and feeding difficulties. The median age of patients was 3 (min = 1, max = 12) years, of which 57.8% were male. 43.8% of cases were isolated-EA, and 56.3% were EA-distal TEF. 57.8% of cases received early repair, and 42.2% had delayed repair. The median time to start oral feeding was 4 weeks (min = 1, max = 128). The mean scores of daily activities, worry, feeding difficulties, and total score from the T-FS-IS were 2.43 ± 1.18, 2.73 ± 1.28, 2.10 ± 0.97, and 2.44 ± 1.09, respectively. Caregivers of children with isolated-EA reported more problems in total score and all subscales of the T-FS-IS than EA-distal TEF (p < 0.01). Caregivers of children who received delayed repair reported more problems in total score and all subscales of the T-FS-IS than children with early repair (p < 0.05). Moderate to strong correlations were found between the T-FS-IS and time to start oral feeding (p < 0.01, r = 0.55-0.65). This study suggests that caregivers of children with isolated-EA and/or delayed repair and/or delay in oral intake may have higher concerns related to feeding-swallowing difficulties.
本研究旨在评估 EA-TEF 相关喂养-吞咽困难患儿的照顾者的担忧，根据不同的闭锁类型和修复时间比较这些担忧，并探讨其与开始口服喂养的时间的关系。共纳入 64 例 EA-TEF 患儿的照顾者。记录年龄、性别、闭锁类型、修复时间和开始口服喂养的时间。父母使用土耳其版喂养/吞咽影响调查问卷（T-FS-IS）评估与喂养-吞咽困难相关的照顾者的担忧。T-FS-IS 有三个分量表，包括日常生活活动、担忧和喂养困难。患者的中位年龄为 3 岁（最小=1 岁，最大=12 岁），其中 57.8%为男性。43.8%的病例为单纯 EA，56.3%为 EA 远端 TEF。57.8%的病例行早期修复，42.2%行延迟修复。开始口服喂养的中位时间为 4 周（最小=1 周，最大=128 周）。T-FS-IS 的日常生活活动、担忧、喂养困难和总分的平均得分分别为 2.43±1.18、2.73±1.28、2.10±0.97 和 2.44±1.09。单纯 EA 的患儿照顾者在总分和 T-FS-IS 的所有分量表上的得分均高于 EA 远端 TEF（p<0.01）。行延迟修复的患儿照顾者在总分和 T-FS-IS 的所有分量表上的得分均高于行早期修复的患儿（p<0.05）。T-FS-IS 与开始口服喂养的时间之间存在中度至强相关性（p<0.01，r=0.55-0.65）。本研究表明，孤立性 EA 和/或延迟修复和/或口服摄入延迟的患儿的照顾者可能对喂养-吞咽困难有更高的担忧。
