Division of General Academic Pediatrics, Department of Pediatrics, Massachusetts General Hospital for Children, 125 Nashua Street, Suite 860, Boston, MA, USA.
Department of Pediatrics, Harvard Medical School, Boston, MA, USA.
Dysphagia. 2023 Feb;38(1):220-226. doi: 10.1007/s00455-022-10455-z. Epub 2022 Apr 29.
By understanding health conditions, impairments, and impact on quality of life for pediatric feeding disorders, assessment and treatment approaches can target multiple levels of health-related domains that improve child health and well-being. The purpose of this study was to characterize medical diagnoses and feeding impairments for children with feeding disorders; examine child quality of life and caregiver impact; and compare quality of life differences between children with feeding disorders and children with other conditions. A cross-sectional study was conducted in the Greater Boston Area, between October 2017 and June 2018. Fifty children with a feeding disorder diagnosis, ages 2-5 years, were enrolled. Demographic and clinical data were abstracted from the electronic health record to characterize medical diagnoses and impairments. Parents completed the Pediatric Quality of Life Generic Core Scales 4.0 (PedsQL) and the Feeding/Swallowing Impact Survey (FS-IS) to understand child quality of life and caregiver impact. We calculated descriptive statistics across the medical diagnosis and impairment groups, and for the surveys. Children presented with heterogeneous medical diagnoses and feeding impairments. We found a mean (SD) total score of 72.82(19.21) on the PedsQL and 2.33(0.89) on the FS-IS demonstrating that children with feeding disorders presented with poor quality of life and their caregivers were negatively impacted by their feeding difficulties. By understanding medical diagnoses, impairments, and quality of life, assessment and treatment methods can be tailored to children's specific needs, as well as address the overall wellbeing of children and their families.
通过了解儿科喂养障碍的健康状况、障碍和对生活质量的影响，可以针对与健康相关的多个领域进行评估和治疗，从而改善儿童的健康和福祉。本研究的目的是描述患有喂养障碍的儿童的医学诊断和喂养障碍；检查儿童的生活质量和照顾者的影响；并比较喂养障碍儿童和其他疾病儿童的生活质量差异。这是一项在大波士顿地区进行的横断面研究，时间为 2017 年 10 月至 2018 年 6 月。共有 50 名年龄在 2-5 岁的患有喂养障碍的儿童入组。从电子健康记录中提取人口统计学和临床数据，以描述医学诊断和损伤。父母完成了儿童生活质量通用核心量表 4.0（PedsQL）和喂养/吞咽影响调查（FS-IS），以了解儿童的生活质量和照顾者的影响。我们计算了医学诊断和损伤组以及调查的描述性统计数据。儿童表现出异质的医学诊断和喂养障碍。我们发现 PedsQL 的平均（SD）总分为 72.82（19.21），FS-IS 的平均（SD）总分为 2.33（0.89），这表明患有喂养障碍的儿童生活质量较差，其照顾者因喂养困难而受到负面影响。通过了解医学诊断、损伤和生活质量，可以针对儿童的特定需求制定评估和治疗方法，同时解决儿童及其家庭的整体幸福感。
