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青少年特发性脊柱侧弯患者的支具依从性模型:一项定性研究。

Brace Compliance Model in Adolescents with Idiopathic Scoliosis: A Qualitative Research.

作者信息

Sharifi Pouya, Kamali Mohammad, Ranjbar Hadi, Akbarfahimi Malahat, Babaee Taher

机构信息

Department of Orthotics and Prosthetics, School of Rehabilitation Sciences, Iran University of Medical sciences, Tehran, Iran.

Department of Rehabilitation Basic Sciences, Rehabilitation Research Center, School of Rehabilitation Sciences, Iran University of Medical Sciences, Tehran, Iran.

出版信息

Med J Islam Repub Iran. 2025 Feb 17;39:27. doi: 10.47176/mjiri.39.27. eCollection 2025.

Abstract

BACKGROUND

Evaluating the performance of a brace in the treatment of adolescents with idiopathic scoliosis, without considering the process of brace compliance, is not comprehensive and valuable. This study aimed to evaluate the multifaceted and complex modality of brace compliance by drawing a comprehensive model with a qualitative approach.

METHODS

This study employed the grounded theory methodology to systematically explore and interpret factors affecting brace compliance, uncovering patterns and themes that influence treatment success. Data collection involved nonrandom convenience sampling of individuals from local clinics specializing in orthotic management of scoliosis. A semi-structured interview guide was utilized to explore participants' experiences, challenges, and perceptions related to brace compliance and orthotic treatment. We engaged in constant comparison analysis as data were collected until we reached saturation, where no new themes emerged from additional data.

RESULTS

A total of 133 codes about the experiences of patients, parents, and specialists were extracted from the transcripts and categorized into 42 subthemes. The study identified 8 interconnected themes-including extensive lifestyle changes, visible improvements, supervision dynamics, result maintenance, a sense of difference, long-term commitment, monotony, and hope for a definitive treatment without surgery.

CONCLUSION

This comprehensive analysis provides valuable insights into the multifaceted nature of compliance with braces and the dynamic interplay between patients, their families, and the treatment process.

摘要

背景

在评估支具治疗特发性脊柱侧弯青少年的效果时,若不考虑支具依从性过程,是不全面且无价值的。本研究旨在通过定性方法绘制一个综合模型,评估支具依从性这一多方面且复杂的模式。

方法

本研究采用扎根理论方法,系统地探索和解释影响支具依从性的因素,揭示影响治疗成功的模式和主题。数据收集涉及从当地专门从事脊柱侧弯矫形管理的诊所中进行非随机便利抽样选取个体。使用半结构化访谈指南来探索参与者与支具依从性及矫形治疗相关的经历、挑战和看法。在收集数据过程中进行持续比较分析,直至达到饱和状态,即额外数据不再产生新主题。

结果

从访谈记录中总共提取了133条关于患者、家长和专家经历的编码,并归类为42个子主题。该研究确定了8个相互关联的主题,包括广泛的生活方式改变、明显改善、监督动态、结果维持、差异感、长期投入、单调感以及对非手术确定性治疗的希望。

结论

这一综合分析为支具依从性的多方面性质以及患者、其家庭与治疗过程之间的动态相互作用提供了有价值的见解。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/03e2/12138775/f5d6ab5bd86c/mjiri-39-27-g001.jpg

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