van Nimwegen Dagmar J J, Vervoort Sigrid C J M, Visser-Meily Johanna M A, Schoonhoven Lisette, de Man-van Ginkel Janneke M
Research Group Proactive Care for Older People Living at Home, Research Center for Healthy and Sustainable Living, HU University of Applied Sciences Utrecht, Utrecht, the Netherlands.
Department of Nursing Science, Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Utrecht, the Netherlands.
Int J Nurs Stud Adv. 2025 May 10;8:100348. doi: 10.1016/j.ijnsa.2025.100348. eCollection 2025 Jun.
Stroke patients often experience different consequences, negatively impacting their psychosocial well-being. Since every patient has their individual process and their individual needs, providing personalised stroke care is difficult. Determining what is needed in stroke care is crucial to optimize well-being after stroke.
To gain understanding of how patients experience the process they go through, which psychosocial needs they experience, and whether the current stroke care matches this process.
A qualitative study according to the methodology of Grounded Theory, by conducting semi-structured interviews with ten stroke patients who were receiving stroke care in a stroke service.
Patients after stroke go through a basic social process of reshaping life which was characterized by two perspectives - feeling lost and rediscovering yourself. These perspectives could be refined on several themes: focusing on capabilities; setting goals; experiencing emotions; feeling heard or understood; and finding meaning in life. The following themes influence this process: help and understanding from patients' network; patients' needs being met in stroke care; and support and motivation from other patients.
Healthcare professionals could use the found process of reshaping life to determine for each patient where they find themselves within this process. They can use this to determine which needs patients experience, and how they can match these needs to support patients in reshaping life to improve patients' psychosocial well-being after stroke.
This study was supported by the Taskforce for Applied Research SIA (RAAK.PUB04.010) and was registered at the Dutch Trial Register (NL7440).
中风患者常常会经历不同的后果，对其心理社会幸福感产生负面影响。由于每个患者都有其独特的病程和需求，提供个性化的中风护理很困难。确定中风护理所需的内容对于优化中风后的幸福感至关重要。
了解患者如何体验他们所经历的过程、他们经历了哪些心理社会需求，以及当前的中风护理是否与这个过程相匹配。
根据扎根理论方法进行一项定性研究，对在中风服务机构接受中风护理的10名中风患者进行半结构化访谈。
中风后的患者经历了一个重塑生活的基本社会过程，其特点有两个方面——感到迷失和重新发现自我。这些方面可以在几个主题上进一步细化：关注自身能力；设定目标；体验情绪；感到被倾听或理解；以及找到生活的意义。以下主题影响这个过程：来自患者社交网络的帮助和理解；中风护理中患者的需求得到满足；以及其他患者的支持和激励。
医疗保健专业人员可以利用所发现的重塑生活过程，来确定每个患者在这个过程中所处的位置。他们可以据此确定患者经历了哪些需求，以及如何满足这些需求，以支持患者重塑生活，从而改善中风后患者的心理社会幸福感。
本研究由应用研究特别工作组SIA（RAAK.PUB04.010）资助，并在荷兰试验注册中心注册（NL7440）。
