Mannino David M, Trac Sarina, Seth Jai, Dixon Amy, Aggarwal Kavita, Kuhn Brooks
COPD Foundation, Miami, Florida, United States.
Phreesia Life Sciences, Wilmington, Delaware, United States.
Chronic Obstr Pulm Dis. 2025 Jul 30;12(4):317-327. doi: 10.15326/jcopdf.2025.0616.
Chronic obstructive pulmonary disease (COPD) affects millions of people and is associated with significant morbidity and mortality. Patients experience a high symptom burden with impacts on quality of life, which have not been well quantified.
Phreesia's PatientInsightsquantitative survey was offered in January 2025 to patients with COPD during their check-in process for health care provider (HCP) visits. The survey comprised 28 questions. Survey question categories included COPD symptom experience and impact, and the treatment journey of patients with COPD. The survey also sought to identify potential communication gaps between patients and HCPs that might hinder effective COPD management.
Of 1615 patients surveyed, most (59%) were female, and the majority identified as White (82%). A total of 39% of patients had experienced COPD for over 7 years at the time the survey was conducted, and 25% reported experiencing symptoms all 30 days in a typical month. A large proportion (64%) said that COPD had a moderate-to-great impact on their daily lives. Only 45% of patients had detailed discussions about their COPD with their HCPs. Among patients who had not tried/were currently not on any maintenance medications (n=339), the leading reasons included that their COPD was not severe enough, and that their HCP had not recommended it. Among patients who had tried maintenance medications, the majority (77%) indicated that they would be willing to try another therapy.
Improvements in patient-HCP communication are needed to achieve more effective, timely COPD management.
慢性阻塞性肺疾病（COPD）影响着数百万人，与显著的发病率和死亡率相关。患者承受着较高的症状负担，对生活质量产生影响，而这些影响尚未得到很好的量化。
2025年1月，Phreesia的患者洞察定量调查在慢性阻塞性肺疾病患者前往医疗服务提供者（HCP）处就诊的登记过程中提供。该调查包括28个问题。调查问题类别包括慢性阻塞性肺疾病的症状体验和影响，以及慢性阻塞性肺疾病患者的治疗历程。该调查还试图找出患者与医疗服务提供者之间可能阻碍慢性阻塞性肺疾病有效管理的潜在沟通差距。
在接受调查的1615名患者中，大多数（59%）为女性，大多数患者为白人（82%）。在进行调查时，共有39%的患者患慢性阻塞性肺疾病超过7年，25%的患者报告在一个典型月份的30天里每天都有症状。很大一部分（64%）患者表示慢性阻塞性肺疾病对他们的日常生活有中度至极大影响。只有45%的患者与他们的医疗服务提供者详细讨论过他们的慢性阻塞性肺疾病。在未尝试过/目前未服用任何维持药物的患者中（n = 339），主要原因包括他们的慢性阻塞性肺疾病不够严重，以及他们的医疗服务提供者未推荐。在尝试过维持药物的患者中，大多数（77%）表示他们愿意尝试另一种治疗方法。
需要改善患者与医疗服务提供者之间的沟通，以实现更有效、及时的慢性阻塞性肺疾病管理。
