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病毒式声音:社交媒体上对女性疼痛经历的描绘

Viral voices: Depictions of women's pain experiences on social media.

作者信息

Mazzocca Kelly, Langmuir Tori, Manan Jasmine, Gagnon Michelle M, Alberts Nicole M

机构信息

Department of Psychology, Concordia University, 7141 Sherbrooke Street West, Montreal, Quebec H4B 1R6, Canada.

Department of Psychology and Health Studies, University of Saskatchewan, 9 Campus drive, Saskatoon, Saskatchewan S7N 5A2, Canada.

出版信息

J Pain. 2025 Jun 11;33:105461. doi: 10.1016/j.jpain.2025.105461.

Abstract

TikTok is a popular social media platform increasingly used to disseminate health information and personal experiences, including among women with pain. Characterizing health-related content can help understand how public perceptions are shaped and guide improvements in patient care. Although women with pain often seek information on social media, little is known about social media content pertaining to women's pain. In this study, the content, characteristics, and engagement metrics of the top 100 TikTok videos on women's pain were analyzed. "Women's pain" was searched on TikTok using TikTok's proprietary algorithm. A total of 140 videos were retained for preliminary extraction, and the first 100 that met inclusion criteria were analyzed. Qualitative content analysis of video content was performed, leading to the development of 15 content categories. Of these categories, 66.6% (10/15) represented aspects of women's pain experiences characterized as having a negative tone, including "visual depiction of being in pain," "minimizing/dismissing/gaslighting women's pain," "ineffective pain treatment," "women's pain not being investigated enough," and "assuming women's pain is due to menstruation, motherhood, or mental health issues." Descriptive analyses indicated that the top 100 videos had a combined 338.8 million views and 35.1 million likes. Most videos featured non-healthcare providers' creators (76.0%). Across content categories, the highest engagement rates were observed for the category "women's pain is not understood by others" (15.0%). Overall, strong negative trends were observed in TikTok video content pertaining to women's pain. These findings underscore the urgent need for improved pain care for women experiencing pain. PERSPECTIVE: This article reports on the content, characteristics, and engagement metrics of the top 100 TikTok videos pertaining to women's pain. These findings provide clinicians and researchers with important insights into women's pain experiences and have the potential to inform future research, education, and training initiatives aimed at improving women's pain management.

摘要

TikTok是一个广受欢迎的社交媒体平台,越来越多地被用于传播健康信息和个人经历,包括在患有疼痛的女性群体中。对与健康相关的内容进行特征分析,有助于理解公众认知是如何形成的,并指导改善患者护理。尽管患有疼痛的女性经常在社交媒体上寻求信息,但对于与女性疼痛相关的社交媒体内容却知之甚少。在本研究中,分析了TikTok上关于女性疼痛的前100个视频的内容、特征和参与度指标。使用TikTok的专有算法在TikTok上搜索“女性疼痛”。总共保留了140个视频用于初步提取,并对符合纳入标准的前100个视频进行了分析。对视频内容进行了定性内容分析,得出了15个内容类别。在这些类别中,66.6%(10/15)代表了女性疼痛经历中具有负面基调的方面,包括“疼痛的视觉描绘”“轻视/驳回/否定女性的疼痛”“无效的疼痛治疗”“对女性疼痛的调查不足”以及“认为女性的疼痛是由月经、母亲身份或心理健康问题引起的”。描述性分析表明,前100个视频的总观看量为3.388亿次,点赞量为3510万次。大多数视频的创作者是非医疗保健提供者(76.0%)。在各个内容类别中,“女性的疼痛不被他人理解”这一类别观察到的参与率最高(15.0%)。总体而言,在TikTok上与女性疼痛相关的视频内容中观察到了强烈的负面趋势。这些发现强调了迫切需要改善对经历疼痛的女性的疼痛护理。观点:本文报告了TikTok上与女性疼痛相关的前100个视频的内容、特征和参与度指标。这些发现为临床医生和研究人员提供了关于女性疼痛经历的重要见解,并有可能为未来旨在改善女性疼痛管理的研究、教育和培训举措提供信息。

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