H Merrington, A Mahimbo, M DiGiacomo, B Roxas-Harris, Mr Agar, S Nathan, A Hayen, Ae Heywood, A Dawson
School of Public Health, The University of Technology Sydney, Sydney, NSW, Australia.
IMPACCT, The University of Technology Sydney, Sydney, NSW, Australia.
Palliat Med. 2025 Jul;39(7):750-764. doi: 10.1177/02692163251338583. Epub 2025 Jun 14.
Refugees experience barriers to health care after resettlement and may have distinct palliative care needs. There is no systematic guidance to support person-centred palliative care services that are responsive to refugees' needs and preferences.
To synthesis evidence regarding factors enhancing the wellbeing of refugees with advanced life-limiting illness, and their families, to inform palliative care in high-income resettlement countries.
A systematic review of primary research studies. We applied a strength-based assets framework to the data extraction and synthesis and conducted a directed content analysis.
We searched nine electronic databases.
Ten of the 1006 studies identified were included in the review: two qualitative, one quantitative and seven case studies. We identified 17 assets that enhanced refugees' wellbeing: resilience, religion, spirituality, sense of identity, belonging, community connections, health and death literacy, acculturation, family and social support, social capital, community structures, access to funeral information, access to services, palliative care service approaches, and workforce capacity. Resilience was linked to identity and belonging, connections within cultural and religious networks, social capital and creating meaningful funeral rituals in resettlement. Palliative care workforce capacity, death literacy, acculturation, refugees' grief experiences and willingness to discuss and plan for death, influenced refugees' attitudes to palliative care, communication with staff about treatment, prognosis and spiritual care, and care outcomes.
Further research, co-designed with diverse refugee groups, is needed to inform palliative care service approaches, develop interventions to strengthen key assets and explore the nuanced role of social capital in end-of-life care.
难民在重新安置后面临医疗保健方面的障碍，可能有独特的姑息治疗需求。目前没有系统的指导来支持以患者为中心的姑息治疗服务，以满足难民的需求和偏好。
综合有关改善患有晚期绝症的难民及其家人福祉的因素的证据，为高收入重新安置国家的姑息治疗提供参考。
对原始研究进行系统综述。我们在数据提取和综合过程中应用了基于优势的资产框架，并进行了定向内容分析。
我们检索了九个电子数据库。
在检索到的1006项研究中，有10项被纳入综述：2项定性研究、1项定量研究和7项案例研究。我们确定了17项可增强难民福祉的资产：复原力、宗教、精神性、身份认同感、归属感、社区联系、健康和死亡素养、文化适应、家庭和社会支持、社会资本、社区结构、获取葬礼信息、获得服务、姑息治疗服务方法以及工作人员能力。复原力与身份认同和归属感、文化和宗教网络内人际关系、社会资本以及在重新安置过程中创造有意义的葬礼仪式相关。姑息治疗工作人员能力、死亡素养、文化适应、难民的悲伤经历以及讨论和规划死亡的意愿，影响了难民对姑息治疗的态度、与工作人员就治疗、预后和精神护理进行的沟通以及护理结果。
需要与不同难民群体共同设计进一步的研究，以为姑息治疗服务方法提供参考，制定加强关键资产的干预措施，并探索社会资本在临终护理中的细微作用。
