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临床医生对与潜在无效治疗相关的道德困扰中机构因素的看法。

Clinicians' Perceptions About Institutional Factors in Moral Distress Related to Potentially Nonbeneficial Treatments.

作者信息

Brender Teva D, Axelrod Julia K, Weiss Goitiandia Sofia, Batten Jason N, Dzeng Elizabeth W

机构信息

Department of Medicine, University of California, San Francisco.

Division of Hospital Medicine, Department of Medicine, University of California, San Francisco.

出版信息

JAMA Netw Open. 2025 Jun 2;8(6):e2516089. doi: 10.1001/jamanetworkopen.2025.16089.

Abstract

IMPORTANCE

Clinicians commonly experience moral distress related to potentially nonbeneficial life-sustaining treatments (LST). Hospitals' institutional culture (eg, shared beliefs, values, and practices), structures (eg, policies, practices, resource allocation), and societal-level factors (eg, national culture, local and national policies, medical hierarchies) may contribute to moral distress related to potentially nonbeneficial LST.

OBJECTIVE

To investigate clinicians' perspectives on how hospitals' institutional culture and structures might exacerbate, prevent, or mitigate the influence of societal factors contributing to moral distress related to potentially nonbeneficial LST.

DESIGN, SETTING, AND PARTICIPANTS: This qualitative study used comparative ethnographic methods. Semistructured, in-depth interviews were conducted between February 2018 and June 2022 at 4 West Coast academic hospitals selected for their varying intensities of end-of-life care. Interview participants were hospital-based clinicians (eg, nurses, physicians), hospital leaders (eg, unit nursing and medical directors), and administrators with differing clinical backgrounds and professional responsibilities. Data were analyzed in 2 phases, from January 2019 to December 2022 and from June to September 2024.

MAIN OUTCOMES AND MEASURES

Clinicians were asked about their hospitals' institutional culture and structures and their relationship to clinicians' experiences of moral distress related to potentially nonbeneficial LST in end-of-life care.

RESULTS

A total of 122 interviews were conducted (75 physicians [61%]; 22 nurses [18%]; 6 advanced practice clinicians [6%]; 68 [56%] women; mean [range] age, 42 [27-74] years). Respondents felt hospitals' institutional culture and structures could exacerbate moral distress. Respondents reported that a hospital culture of health care consumerism influenced clinicians', patients', and families' expectations for treatment intensity, contributing to morally distressing situations. Nurses and primary team physicians felt constrained by medical hierarchies, leading to perceptions of disempowerment and moral distress. Clinicians also reported that institutions lacked sufficient structures to support efforts to de-escalate potentially nonbeneficial treatments. However, respondents also reported that hospitals' institutional culture and structures could prevent or mitigate moral distress. Respondents felt policies empowering clinicians across the medical hierarchy to participate in decision-making reduced moral distress. They reported that institutional resources could manage conflicts and provide emotional support when moral distress occurs. Furthermore, respondents felt that clinician-driven quality improvement initiatives and supportive hospital leaders could address hospitals' institutional cultural and structural contributors to moral distress.

CONCLUSIONS AND RELEVANCE

In this qualitative study, clinicians perceived that institutional factors affected their experiences of moral distress related to potentially nonbeneficial LST by exacerbating, preventing, or mitigating the influence of 3 societal factors: defaults of high-intensity treatments, health care consumerism, and medical hierarchies. These results have implications for developing tailored institutional-level interventions to address societal and institutional contributors to moral distress from potentially nonbeneficial LST.

摘要

重要性

临床医生经常会因可能无益处的维持生命治疗(LST)而经历道德困扰。医院的机构文化(如共同的信念、价值观和实践)、结构(如政策、实践、资源分配)以及社会层面的因素(如国家文化、地方和国家政策、医疗等级制度)可能会导致与可能无益处的LST相关的道德困扰。

目的

探讨临床医生对医院机构文化和结构如何加剧、预防或减轻导致与可能无益处的LST相关道德困扰的社会因素影响的看法。

设计、背景和参与者:这项定性研究采用了比较人种学方法。2018年2月至2022年6月期间,在4家西海岸学术医院进行了半结构化的深入访谈,这些医院因临终关怀强度不同而被选中。访谈参与者包括医院临床医生(如护士、医生)、医院领导(如科室护理和医疗主任)以及具有不同临床背景和专业职责的管理人员。数据分两个阶段进行分析,时间分别为2019年1月至2022年12月以及2024年6月至9月。

主要结果和衡量指标

询问临床医生关于他们医院的机构文化和结构,以及它们与临床医生在临终关怀中因可能无益处的LST而产生的道德困扰经历之间的关系。

结果

共进行了122次访谈(75名医生[61%];22名护士[18%];6名高级执业临床医生[6%];68名[56%]女性;平均[范围]年龄为42[27 - 74]岁)。受访者认为医院的机构文化和结构可能会加剧道德困扰。受访者报告称,医疗保健消费主义的医院文化影响了临床医生、患者及其家属对治疗强度的期望,导致了道德困扰的情况。护士和初级团队医生感到受到医疗等级制度的限制,导致产生无权感和道德困扰。临床医生还报告称,机构缺乏足够的结构来支持降低可能无益处治疗强度的努力。然而,受访者也报告称,医院的机构文化和结构可以预防或减轻道德困扰。受访者认为,赋予医疗等级制度中的临床医生参与决策权力的政策减少了道德困扰。他们报告称,机构资源可以管理冲突,并在出现道德困扰时提供情感支持。此外,受访者认为临床医生推动的质量改进举措和支持性的医院领导可以解决医院机构文化和结构中导致道德困扰的因素。

结论和意义

在这项定性研究中,临床医生认为机构因素通过加剧、预防或减轻三个社会因素的影响,从而影响了他们与可能无益处的LST相关的道德困扰经历,这三个社会因素分别是高强度治疗的默认情况、医疗保健消费主义和医疗等级制度。这些结果对于制定针对性的机构层面干预措施具有启示意义,以解决可能无益处的LST导致道德困扰的社会和机构因素。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4b71/12171942/ebacdcf3bfbc/jamanetwopen-e2516089-g001.jpg

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