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“我们希望做到,但……”:中国一线医护人员在为癌症幸存者提供心理社会关怀方面面临的障碍

"We hope to, but…": Chinese frontliners' barriers in providing psychosocial care for cancer survivors.

作者信息

Peng Ziqi, Su Xiaohui, Hung Suet Lin

机构信息

Department of Social Work, Hong Kong Baptist University, Hong Kong, SAR, China.

School of Sociology and Anthropology, Sun Yat-sen University, Guangzhou, China.

出版信息

Asia Pac J Oncol Nurs. 2025 May 19;12:100725. doi: 10.1016/j.apjon.2025.100725. eCollection 2025 Dec.

Abstract

OBJECTIVE

In recent years, there has been an emerging trend of psychosocial oncology caring strategies within the Chinese context. However, many survivors undergoing different stages of the cancer journey continue to report significant life disruptions and unmet psychosocial care needs. While the crucial role frontline professionals play in providing this care, little is known about the critical barriers they encounter. This study aims to provide a comprehensive understanding of the barriers Chinese frontline professionals face in providing psychosocial oncology care.

METHODS

This study employed a qualitative design with semi-structured interviews. Twenty oncology nurses and social workers with at least one year of experience in relevant specializations were recruited. The interview data were audio-recorded, transcribed, and thematically analyzed to identify themes.

RESULTS

Three dominant themes and subthemes were identified: (1) Overburdened clinical work and inadequate training, (2) Emotional and social struggles faced by survivors and their families that hinder the employment of psychosocial care, (3) System failures: social, structural, and policy barriers.

CONCLUSIONS

The findings shed light on the complexities and barriers among frontline professionals in providing psychosocial oncology care. A central paradox emerged between professionals' desire to offer comprehensive care and the systemic barriers encountered, including limited institutional support and resources, and low public awareness. This study highlighted the need for a context-specific psychosocial oncology framework for research and practice. Interdisciplinary collaboration should be made among research, policy, and social education, which aims to enrich public awareness of psychosocial oncology and provide financial and resource support for practices.

摘要

目的

近年来,中国背景下的心理社会肿瘤学护理策略呈现出一种新趋势。然而,许多处于癌症不同阶段的幸存者仍报告称生活受到严重干扰,心理社会护理需求未得到满足。尽管一线专业人员在提供此类护理方面发挥着关键作用,但对于他们所面临的关键障碍却知之甚少。本研究旨在全面了解中国一线专业人员在提供心理社会肿瘤学护理时所面临的障碍。

方法

本研究采用定性设计,进行半结构化访谈。招募了20名具有至少一年相关专业经验的肿瘤学护士和社会工作者。访谈数据进行了录音、转录,并进行主题分析以确定主题。

结果

确定了三个主要主题和子主题:(1)临床工作负担过重和培训不足,(2)幸存者及其家庭面临的情感和社会困境阻碍了心理社会护理的实施,(3)系统失灵:社会、结构和政策障碍。

结论

研究结果揭示了一线专业人员在提供心理社会肿瘤学护理时的复杂性和障碍。在专业人员提供全面护理的愿望与所遇到的系统性障碍之间出现了一个核心矛盾,包括机构支持和资源有限以及公众意识淡薄。本研究强调需要一个针对具体情况的心理社会肿瘤学研究和实践框架。应在研究、政策和社会教育之间开展跨学科合作,旨在提高公众对心理社会肿瘤学的认识,并为实践提供资金和资源支持。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/7314/12172978/de2de1e1cd9a/gr1.jpg

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