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小婴儿的小胜利:庆祝每周的成功有助于父母应对新生儿重症监护病房住院治疗。

Small Wins for Small Babies: Celebrating Weekly Successes Helps Parents Cope With the NICU Hospitalisation.

作者信息

Boutillier Béatrice, Labelle Fanny, Lancastre Emilie, Lorier Magali Rey-Le, Laurin Christine, Fournier Sophie, Legault Elisabeth, Lachambre Christiane, Janvier Annie

机构信息

Unité D'éthique Clinique et Organisationnelle, Centre de Recherche, CHU Sainte-Justine, Montréal, Canada.

Division of Neonatology, CHU Sainte-Justine, Montréal, Canada.

出版信息

Acta Paediatr. 2025 Oct;114(10):2683-2690. doi: 10.1111/apa.70167. Epub 2025 Jun 18.

Abstract

AIM

To describe the implementation and evaluation of an intervention to celebrate babies' weekly achievements in the neonatal unit (prolonged hospitalisations) and examine parental perspectives.

METHODS

In a feasibility study, 92 parents reported the lack of optimism in the NICU, that clinicians often focused on what was going wrong; they recommended weekly celebration of accomplishments. The formats recommended were both physical (certificate given to parents) and virtual (text message). Inclusion criteria were baby > 1 week of life, likely survival, predicted hospitalisation > 1 month and parental consent. Parental perspectives were investigated using mixed methods with a questionnaire after discharge.

RESULTS

The parents of 93 babies received weekly certificates (100% participation). The length of stay was on average 104 days, for a total of 1182 certificates/text messages received. 45% answered the questionnaire. The overall evaluation of parents was 9.1 of10; 88% reported it helped them cope with hospitalisation. Parental answers to open-ended questions were all positive and invoked gratitude, empowerment, patience and hope.

CONCLUSION

Weekly text messages and certificates celebrating babies' accomplishments were appreciated and helped parents cope. It is possible to instil healthy optimism in the NICU.

摘要

目的

描述在新生儿病房(长期住院)庆祝婴儿每周成长成就的一项干预措施的实施与评估情况,并探究家长的看法。

方法

在一项可行性研究中,92位家长报告说新生儿重症监护病房(NICU)缺乏乐观氛围,临床医生常常关注出现问题的方面;他们建议每周庆祝婴儿的成就。推荐的形式包括实体形式(给家长颁发证书)和虚拟形式(发送短信)。纳入标准为婴儿出生超过1周、有可能存活、预计住院时间超过1个月且获得家长同意。在婴儿出院后,采用问卷调查的混合方法对家长的看法进行调查。

结果

93名婴儿的家长每周都收到了证书(参与率100%)。平均住院时间为104天,共收到1182份证书/短信。45%的家长回答了问卷。家长的总体评价为9.1分(满分10分);88%的家长表示这有助于他们应对住院情况。家长对开放式问题的回答均为积极,表达了感激、获得力量、耐心和希望。

结论

每周通过短信和证书来庆祝婴儿的成就受到了家长的欢迎,并帮助家长应对住院情况。在新生儿重症监护病房中灌输健康的乐观情绪是可行的。

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