Bear Don't Walk Iv Oliver, McLester-Davis Lauren W Yowelunh, Trinidad Susan Brown
Department of Biomedical Informatics and Medical Education, University of Washington, Seattle, WA, United States.
Native American Center for Health Professions, University of Wisconsin-Madison, Madison, WI, United States.
J Med Internet Res. 2025 Jun 18;27:e77946. doi: 10.2196/77946.
Access and the ability to work with Tribal data can vastly improve the ability of Tribal Nations to support their citizens' health and well-being. In this commentary, we expand on previous calls for state and federal public health agencies to share data with Tribes by default. Previous research has described the legal and ethical lay of the land concerning public health data sharing while underscoring the importance of respect for Tribal sovereignty. In this commentary, we expand on this argument by proposing additional pathways through which data can benefit Tribes and identifying critical steps for Tribes to fully benefit from Tribal data. Specifically, we argue for (1) renewed interest and investment in Tribal data science education; (2) proactive data practices, laws, and policies that support long-term health and well-being; and (3) the federal government honoring its trust responsibility to support Tribal data resources.
获取并使用部落数据的能力能够极大地提升部落国家支持其公民健康和福祉的能力。在这篇评论文章中，我们进一步呼吁州和联邦公共卫生机构默认与部落共享数据。先前的研究描述了公共卫生数据共享方面的法律和道德状况，同时强调了尊重部落主权的重要性。在这篇评论文章中，我们通过提出数据可使部落受益的其他途径，并确定部落充分受益于部落数据的关键步骤，来拓展这一论点。具体而言，我们主张：（1）重新关注并投资部落数据科学教育；（2）采取支持长期健康和福祉的积极数据实践、法律及政策；（3）联邦政府履行其支持部落数据资源的信托责任。
