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“你感觉自己是更宏大事物的一部分”:利益相关者对长期社区-学术参与式研究伙伴关系的体验

'You feel part of something bigger': Stakeholders' experiences of a long-term community-academic participatory research partnership.

作者信息

Pellicano Elizabeth, Bent Catherine A, Iacono Teresa, Capes Kristy, Upson Shannon, Hudry Kristelle

机构信息

University College London, UK.

La Trobe University, Australia.

出版信息

Autism. 2025 Jun 19:13623613251348485. doi: 10.1177/13623613251348485.

DOI:10.1177/13623613251348485
PMID:40534283
Abstract

Many community-academic partnerships are established to conduct meaningful research and practice. Yet, little is written about their sustainability and what does exist suggests that effective partnerships are hard to sustain. In this study, we sought insights into what might support successful, enduring community-academic partnerships focused on early childhood autism service provision. We conducted semi-structured interviews and focus groups with 30 staff connected to a university-based early childhood service in education, allied health, management, and research roles, who had been involved in a decade-long community-academic partnership. We analysed the data using reflexive thematic analysis adopting an inductive approach. We identified three key themes. Staff shared strong values and commitments towards inclusive practice and evidence-based practice, which were embedded in the ethos of the partnership (Theme 1). They reported tangible, mutual benefits from working in partnership, with gains in learning and confidence supporting autistic children and families (Theme 2). Interviewees also highlighted the importance of strong equitable relationships, open communication, and fair processes, even if these were not always straightforward to achieve (Theme 3). These insights illustrate the value of ongoing monitoring of community-academic partnerships seeking to inform autism research programmes, policies and practices, while also building sustained community capacity.Lay AbstractWhen academic researchers work in partnership with community members, the research that gets done is usually more meaningful to people's everyday lives. But these 'community-academic partnerships' can be difficult to set up, and even more difficult to keep going. In this project, we wanted to know what factors help to support the success of long-term community-academic partnerships, specifically for early childhood autism services. We spoke in depth to 30 staff connected to a university-based early childhood service, including early childhood educators, allied health professionals (psychologists, speech pathologists, occupational therapists), people managing the service and researchers. All had been involved in a community-research partnership that had been going on for a decade. Two researchers independent of the service led the interviews and analysis, looking for patterns in participants' responses. We identified three main ideas or 'themes'. Staff spoke of their strong values and commitments towards inclusive practice and evidence-based practice, which were shared among those within the partnership (Theme 1). They felt they had learned a lot from being involved in the partnership and had gained confidence supporting autistic children and families (Theme 2). Above all, though, they spoke of how the relationships within the partnership really mattered to making it a success. They emphasised the importance of trust, good communication and fair processes - but also noted that these things were not always achievable (Theme 3). These findings help us understand how researchers and community members can work effectively together to bring lasting benefits to autism research and services, and to the community more broadly.

摘要

许多社区与学术机构的合作关系是为了开展有意义的研究和实践而建立的。然而,关于这些合作关系的可持续性却鲜有著述,现有资料表明有效的合作关系难以维持。在本研究中,我们试图深入了解哪些因素可能有助于成功、持久地建立专注于幼儿自闭症服务提供的社区与学术机构合作关系。我们对30名与一所大学附属幼儿服务机构相关的工作人员进行了半结构化访谈和焦点小组讨论,这些人员分别担任教育、联合健康、管理和研究等职务,他们都参与了长达十年的社区与学术机构合作项目。我们采用归纳法,通过反思性主题分析对数据进行了分析。我们确定了三个关键主题。工作人员对包容性实践和循证实践有着强烈的价值观和承诺,这些价值观和承诺融入了合作关系的精神之中(主题1)。他们报告称,合作带来了切实的互利成果,在支持自闭症儿童及其家庭方面,学习和信心都有所提升(主题2)。受访者还强调了强大的公平关系、开放沟通和公平程序的重要性,即便这些并非总是易于实现(主题3)。这些见解表明,对于旨在为自闭症研究项目、政策和实践提供信息的社区与学术机构合作关系进行持续监测具有重要价值,同时也有助于建设社区的持续能力。

摘要

当学术研究人员与社区成员合作时,所开展的研究通常对人们的日常生活更具意义。但这些“社区与学术机构合作关系”可能难以建立,更难以维持。在这个项目中,我们想了解哪些因素有助于支持长期社区与学术机构合作关系的成功,特别是针对幼儿自闭症服务。我们深入采访了30名与一所大学附属幼儿服务机构相关的工作人员,包括幼儿教育工作者、联合健康专业人员(心理学家、言语病理学家、职业治疗师)、服务管理人员和研究人员。他们都参与了一个持续了十年的社区研究合作项目。两名独立于该服务机构的研究人员主导了访谈和分析,寻找参与者回答中的模式。我们确定了三个主要观点或“主题”。工作人员谈到了他们对包容性实践和循证实践的强烈价值观和承诺,这些在合作关系内部的人员中是共有的(主题1)。他们觉得参与合作让他们学到了很多,并且在支持自闭症儿童及其家庭方面获得了信心(主题2)。然而,最重要的是,他们谈到了合作关系中的人际关系对其成功的重要性。他们强调了信任、良好沟通和公平程序的重要性,但也指出这些并非总是能够实现(主题3)。这些发现有助于我们理解研究人员和社区成员如何能够有效地合作,为自闭症研究和服务以及更广泛的社区带来持久利益。

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