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重新构想联系:自闭症晚期诊断在饮食失调康复和社会支持中的作用。

Re-imagining connection: the role of late autism diagnosis in eating disorder recovery and social support.

作者信息

Downs James, Adams Marissa

机构信息

Expert by Experience, Independent Researcher, Cardiff, Wales.

Expert by Experience, Independent Researcher, Nashville Metropolitan Area, TN, USA.

出版信息

J Eat Disord. 2025 Jun 23;13(1):120. doi: 10.1186/s40337-025-01271-5.

Abstract

This paper explores the complex relationship between autism, social connection, and eating disorder recovery, drawing on the lived experiences of two late-diagnosed autistic adults with histories of longstanding and severe eating disorders. Using narrative and autoethnographic methods, we examine how delayed autism diagnosis intersects with the social dimensions of illness, and the process of treatment and recovery. We identify unique barriers autistic individuals with eating disorders face in building meaningful social connections, navigating support systems, and accessing appropriate care. By integrating personal insights with existing research, we advocate for earlier autism screening and neurodiversity-affirming treatment approaches that embrace and value autistic differences, including the strengths inherent in neurodivergence. This requires a shift in how social support is conceptualised within eating disorder care, prioritising the creation of meaningful connections that address the unique social and emotional needs of autistic individuals. We argue for clinical practices that not only recognise the challenges faced by neurodivergent individuals but also embrace the strengths they bring, fostering environments where autistic individuals can engage authentically in their recovery process. This approach ultimately benefits patients and treatment providers alike, promoting more inclusive, empathetic, and effective care for all.

摘要

本文借鉴了两位成年后才被诊断出患有自闭症且有长期严重饮食失调病史的患者的生活经历,探讨了自闭症、社会联系和饮食失调康复之间的复杂关系。我们运用叙事和自我民族志方法,研究自闭症诊断延迟如何与疾病的社会层面相互交织,以及治疗和康复过程。我们确定了患有饮食失调症的自闭症患者在建立有意义的社会联系、利用支持系统和获得适当护理方面所面临的独特障碍。通过将个人见解与现有研究相结合,我们倡导更早地进行自闭症筛查以及采用肯定神经多样性的治疗方法,这些方法应接纳并重视自闭症差异,包括神经差异所固有的优势。这需要在饮食失调护理中对社会支持的概念化方式进行转变,优先建立能够满足自闭症患者独特社会和情感需求的有意义联系。我们主张临床实践不仅要认识到神经差异个体所面临的挑战,还要接纳他们所带来的优势,营造能够让自闭症患者真正参与康复过程的环境。这种方法最终会使患者和治疗提供者都受益,促进为所有人提供更具包容性、同理心和有效性的护理。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/eca7/12183921/fa27c1955be0/40337_2025_1271_Fig1_HTML.jpg

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