评估抖音和哔哩哔哩作为系统性红斑狼疮健康信息来源的视频内容质量：一项横断面研究。

Assessing the Video Content Quality of TikTok and Bilibili as Health Information Sources for Systemic Lupus Erythematosus: A Cross-Sectional Study.

作者信息

Yang Yi, Jiang Shan, Ning Xingping, Xie Lili, Zhang Xiuling, Yu Le, Shang Jingjing, Feng Xueqin, Ren Jie, Duan Xinwang

机构信息

Department of Rheumatology and Immunology, The Second Affiliated Hospital, Jiangxi Medical College, Nanchang University, Nanchang, China.

Guangzhou Key Laboratory for Germ-Free Animals and Microbiota Application, School of Medicine, Institute of Laboratory Animal Sciences, Jinan University, Guangzhou, China.

出版信息

Int J Rheum Dis. 2025 Jun;28(6):e70341. doi: 10.1111/1756-185X.70341.

DOI:10.1111/1756-185X.70341

PMID:40551617

Abstract

BACKGROUND

Systemic lupus erythematosus (SLE) is a complex autoimmune disease, and the quality of health information shared on social media is critical for patient education. The aim of this study was to evaluate the content and quality of SLE-related videos on TikTok and Bilibili platforms.

METHODS

We retrieved the first 200 Chinese SLE-related videos sorted by default ranking on TikTok and Bilibili. Irrelevant, duplicated, very recent (< 7 days), or pre-2020 videos were excluded. Publisher type (e.g., Doctor, Personal User) was recorded. Video quality was independently assessed using DISCERN, Global Quality Scale (GQS), and JAMA benchmarks; content completeness across six dimensions (e.g., symptoms, management) was evaluated.

RESULTS

We analyzed 265 videos, revealing that 76.3% of TikTok videos were by doctors (median duration 61 s), whereas 57.8% of Bilibili videos were physician-generated (median duration 297 s). Doctor-produced videos had significantly higher quality, with TikTok's average DISCERN score at 35.22, lower than Bilibili's 40.09. Bilibili videos exhibited significantly higher DISCERN scores across dimensions of clarity and reliability compared to TikTok (p < 0.05). However, GQS and JAMA scores were similar between the two platforms (p > 0.05). Engagement metrics such as likes and retweets correlated positively with DISCERN and GQS scores on TikTok, while video length showed a positive correlation with scores on both platforms.

CONCLUSION

Bilibili videos provide clearer and more reliable SLE information than TikTok. Establishing better content standards and increasing collaboration with healthcare professionals are crucial to improving the quality of health information on social media.

摘要

背景

系统性红斑狼疮（SLE）是一种复杂的自身免疫性疾病，社交媒体上共享的健康信息质量对患者教育至关重要。本研究旨在评估TikTok和哔哩哔哩平台上与SLE相关视频的内容和质量。

方法

我们检索了TikTok和哔哩哔哩上按默认排名排序的前200个中文SLE相关视频。排除不相关、重复、发布时间非常近（<7天）或2020年之前的视频。记录发布者类型（如医生、个人用户）。使用DISCERN、全球质量量表（GQS）和《美国医学会杂志》基准对视频质量进行独立评估；评估六个维度（如症状、管理）的内容完整性。

结果

我们分析了265个视频，发现TikTok上76.3%的视频由医生发布（中位时长61秒），而哔哩哔哩上57.8%的视频由医生制作（中位时长297秒）。医生制作的视频质量明显更高，TikTok的平均DISCERN评分为35.22，低于哔哩哔哩的40.09。与TikTok相比，哔哩哔哩的视频在清晰度和可靠性维度上的DISCERN评分明显更高（p<0.05）。然而，两个平台的GQS和《美国医学会杂志》评分相似（p>0.05）。点赞和转发等参与度指标与TikTok上的DISCERN和GQS评分呈正相关，而视频长度与两个平台的评分均呈正相关。