Kuipers S A, Elzinga-Hut C A, Rosema B S, Sanches S, Boertien D, Stavenuiter B, Spoelstra S K, Pijnenborg G H M, Boonstra N
Research Group Healthcare & Innovation in Psychiatry, Department of Healthcare, NHL Stenden University of Applied Sciences, Rengerslaan 8-10, 8900 CG Leeuwarden, The Netherlands.
University of Applied Science GGZ-VS, Catharijnesingel 56-1, 3511 GE Utrecht, The Netherlands.
Nurs Rep. 2025 Jun 3;15(6):197. doi: 10.3390/nursrep15060197.
Although psychoeducation for relatives of individuals with a first episode psychosis is important for increasing understanding of psychosis, reducing relapse rates, decreasing hospitalization duration, and improving patient functionality, there is limited research on the specific experiences and needs of relatives of patients with a first episode psychosis. This study aims to explore the experiences and needs of relatives of young adults with first-episode psychosis regarding psychoeducation, with the goal of developing tailored psychoeducation (PE) that can be delivered by nurses. This qualitative study employed a descriptive, interpretative approach with a total sample of 23 participants, including semi-structured interviews (N = 16), two dyadic interviews (N = 4) and one triadic interview (N = 3). The dyadic interviews included two relatives and two patients, while the triadic interview involved two relatives and one patient. A topic list was utilized to guide the interviews. Thematic analysis was employed to analyse the data, supported by the use of ATLAS.ti. During data analysis, five key themes were identified as relevant for the development of a psychoeducational program: experiences with first-episode psychosis and psychoeducation, the content of PE (what), timing (when), exchanging experiences (how) and joint PE versus separate groups (which format). : This study highlights valuable insights and key components for an integrated psychoeducation program, focussing on the needs and experiences of relatives, for the development of the PE program. To optimize the benefits for both parties, future research should explore the potential of offering PE sessions that accommodate both individual and combined participant formats, allowing for a design tailored to the specific needs of the participants.
尽管对首发精神病患者的亲属进行心理教育对于增进对精神病的理解、降低复发率、缩短住院时间以及改善患者功能很重要，但关于首发精神病患者亲属的具体经历和需求的研究却很有限。本研究旨在探讨首次发作精神病的年轻成年人亲属在心理教育方面的经历和需求，目标是开发可由护士提供的量身定制的心理教育（PE）。这项定性研究采用了描述性、解释性方法，总样本为23名参与者，包括半结构化访谈（N = 16）、两次二元访谈（N = 4）和一次三元访谈（N = 3）。二元访谈包括两名亲属和两名患者，而三元访谈涉及两名亲属和一名患者。使用主题列表来指导访谈。采用主题分析法对数据进行分析，并借助ATLAS.ti软件。在数据分析过程中，确定了五个与心理教育项目开发相关的关键主题：首发精神病和心理教育的经历、PE的内容（是什么）、时机（何时）、交流经验（如何）以及联合PE与分组（哪种形式）。本研究突出了综合心理教育项目的宝贵见解和关键组成部分，重点关注亲属的需求和经历，以开发PE项目。为了使双方都能获得最大益处，未来的研究应探索提供同时兼顾个体和联合参与者形式的PE课程的潜力，以便设计出符合参与者特定需求的方案。
