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童年期接受睾丸假体手术后青少年及青年成人的生活质量:一项定性研究与文献综述

Quality of Life of Adolescents and Young Adults After Testicular Prosthesis Surgery During Childhood: A Qualitative Study and Literature Review.

作者信息

Chantzi Zoi, Fouzas Sotirios, Drivalos Alexandros, Stamati Athanasia, Gkentzis Agapios, Athanasopoulou Maria, Kambouri Katerina, Gkentzi Despoina, Kostopoulou Eirini, Vareli Anastasia, Blevrakis Evangelos, Zachos Konstantinos, Alexopoulos Vasileios, Panagidis Antonios, Plotas Panagiotis, Louta Aspasia, Karatza Ageliki A, Dassios Theodore, Dimitriou Gabriel, Jelastopulu Eleni, Sinopidis Xenophon

机构信息

Department of Pediatric Surgery, University Hospital, 26504 Patras, Greece.

School of Medicine, University of Patras, 26504 Patras, Greece.

出版信息

Children (Basel). 2025 May 31;12(6):720. doi: 10.3390/children12060720.

DOI:10.3390/children12060720
PMID:40564678
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12190729/
Abstract

BACKGROUND/OBJECTIVES: To evaluate the quality of life (QoL) of adolescent and young adult males who had testicular prosthesis surgery during their childhood, as well as their own and their parents' inner perceptions and feelings. To our knowledge, this is the first qualitative study and one of few with an integrated approach on the QoL of pediatric testicular prosthesis recipients.

METHODS

Recipients and their parents were interviewed regarding their life with the testicular prosthesis. Major QoL domains (i.e., physical and mental health, interpersonal relationships, sexuality) were assessed.

RESULTS

Although there were participants who viewed the outcomes with negativity, most expressed satisfaction. Daily routine returned to normal after a postoperative period with precautions, such as fear of damaging either the implant or the healthy testis. Prosthesis feeling was acceptable and normalized with time, while self-image and self-confidence were boosted by the presence of the prosthesis. All participants outlined the importance of privacy as being kept in the inner family circle. Some exhibited introverted behavior. Regarding sentimental and sexual intimacy, the prosthesis produced anxiety and concern both in experienced recipients and minors, which was moderated by a normal scrotal appearance.

CONCLUSIONS

Testicular prosthesis surgery performed from childhood to adulthood may create profound and variable concerns, which may affect the recipients and their companions in the long term. Therefore, it should not be considered in a simplistic manner as a routine procedure and should be preceded by thorough conversation with experts.

摘要

背景/目的:评估童年期接受睾丸假体手术的青少年及青年男性的生活质量(QoL),以及他们自身和父母的内心认知与感受。据我们所知,这是第一项关于小儿睾丸假体接受者生活质量的定性研究,也是为数不多的采用综合方法的研究之一。

方法

就接受者及其父母使用睾丸假体的生活情况进行访谈。评估主要的生活质量领域(即身心健康、人际关系、性方面)。

结果

尽管有部分参与者对结果持负面看法,但大多数人表示满意。术后一段时间内,在采取诸如担心损坏植入物或健康睾丸等预防措施后,日常生活恢复正常。假体感觉是可以接受的,并且会随着时间推移而正常化,而假体的存在增强了自我形象和自信心。所有参与者都强调了在内家庭圈子中保持隐私的重要性。一些人表现出内向行为。关于情感和性亲密关系,假体在有经验的接受者和未成年人中都引发了焦虑和担忧,而阴囊外观正常则缓解了这种情况。

结论

从童年到成年进行的睾丸假体手术可能会引发深刻且多样的担忧,长期来看可能会影响接受者及其同伴。因此,不应将其简单地视为常规手术,而应在术前与专家进行深入的沟通。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/fc85/12190729/1ceb5a5605fa/children-12-00720-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/fc85/12190729/1ceb5a5605fa/children-12-00720-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/fc85/12190729/1ceb5a5605fa/children-12-00720-g001.jpg

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本文引用的文献

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Testicular prostheses: a historical and current review of the literature.睾丸假体:文献的历史和当前回顾。
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2
Quality of reporting for qualitative studies in pediatric urology-A scoping review.儿科泌尿外科学中定性研究报告质量的评价:范围综述。
J Pediatr Urol. 2023 Oct;19(5):643-651. doi: 10.1016/j.jpurol.2023.04.027. Epub 2023 Apr 27.
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Testicular prostheses - impact on quality of life and sexual function.睾丸假体——对生活质量和性功能的影响。
Asian J Androl. 2024 Mar 1;26(2):160-164. doi: 10.4103/aja202325. Epub 2023 Jul 11.
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Quantitative medicine: Tracing the transition from holistic to reductionist approaches. A new "quantitative holism" is possible?定量医学:追溯从整体方法到还原论方法的转变。一种新的“定量整体论”是否可行?
J Public Health Res. 2023 Jun 20;12(2):22799036231182271. doi: 10.1177/22799036231182271. eCollection 2023 Apr.
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Quality over quantity: How qualitative research informs and improves quantitative research.质胜于量:定性研究如何为定量研究提供信息并加以改进。
J Pediatr Urol. 2023 Oct;19(5):655-656. doi: 10.1016/j.jpurol.2023.05.007. Epub 2023 May 12.
6
Concurrent Placement of the Testicular Prosthesis in Children Following Orchiectomy/Testicular Loss.睾丸切除/睾丸缺失后儿童同期植入睾丸假体
J Indian Assoc Pediatr Surg. 2023 Mar-Apr;28(2):111-115. doi: 10.4103/jiaps.jiaps_100_22. Epub 2022 Nov 30.
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Qualitative research in pediatric urology.儿科泌尿外科学中的定性研究。
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Is There Bacterial Growth Inside the Tunica Vaginalis Cavity in Patients With Unsalvageable Testicular Torsion?鞘膜腔内有无无法挽救的睾丸扭转患者的细菌生长?
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J Interpers Violence. 2022 May;37(9-10):NP6135-NP6158. doi: 10.1177/0886260520926317. Epub 2020 Jun 10.
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