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吞咽困难儿童家长的苦恼温度计希腊语版本:一项验证研究。

Greek Version of the Distress Thermometer for Parents of Children with Dysphagia: A Validation Study.

作者信息

Papaleontiou Andri, Siafaka Vassiliki, Voniati Louiza, Gryparis Alexandros, Georgiou Rafaella, Tafiadis Dionysios

机构信息

Department of Speech & Language Therapy, School of Health Sciences, University of Ioannina, 45 500 Ioannina, Greece.

Department of Health Sciences, Speech and Language Therapy, European University, 2404 Nicosia, Cyprus.

出版信息

J Clin Med. 2025 Jun 15;14(12):4260. doi: 10.3390/jcm14124260.

Abstract

The Distress Thermometer for Parents represents an excellent tool for the rapid assessment of emotional distress in parents of children with a variety of chronic diseases. This study aimed to evaluate the efficacy of the Distress Thermometer for Parents in assessing emotional distress in parents and caregivers of children with feeding and swallowing difficulties feeding swallowing disorders or, dysphagia, in the Greek Cypriot community. It involved 200 Greek Cypriot participants: 100 parents/caregivers of children with FSD and 100 parents/caregivers of children without such difficulties. Demographic and clinical data were collected and test-retest reliability was evaluated. The DT-P demonstrated excellent reliability (Cronbach's α = 0.928) and strong test-retest consistency (r = 1.00, < 0.001). ROC analysis showed strong discrimination for detecting distress, with an AUC of 0.76 for parents of children under 24 months and 0.77 for parents of children over 2 years ( < 0.01). Parents reported a medium level of distress (M = 3.67, SD = 2.89), with "Emotional Problems" (M = 2.03, SD = 2.28) and "Practical Problems" (M = 1.79, SD = 2.12) contributing most significantly. Independent -tests revealed significantly higher distress levels in parents in the clinical group compared to the parents in the typical group ( < 0.001), confirming the DT-P's sensitivity and validity. The Greek version of the DT-P is a reliable and valid tool assessing distress in parents of children with PFD. This study highlights significantly higher distress levels in these parents compared to those of typically developing children, emphasizing the need for targeted support.

摘要

《家长苦恼温度计》是快速评估患有各种慢性病儿童家长情绪困扰的优秀工具。本研究旨在评估《家长苦恼温度计》在评估塞浦路斯希腊族社区中患有喂养和吞咽困难(喂养吞咽障碍或吞咽困难)儿童的家长及照料者情绪困扰方面的效果。研究涉及200名塞浦路斯希腊族参与者:100名患有喂养和吞咽困难儿童的家长/照料者以及100名孩子没有此类困难的家长/照料者。收集了人口统计学和临床数据,并评估了重测信度。《家长苦恼温度计》显示出出色的信度(克朗巴哈系数α = 0.928)和较强的重测一致性(r = 1.00,P < 0.001)。ROC分析表明,在检测苦恼方面具有较强的区分能力,24个月以下儿童的家长曲线下面积(AUC)为0.76,2岁以上儿童的家长为0.77(P < 0.01)。家长报告的苦恼程度为中等水平(M = 3.67,标准差 = 2.89),其中“情绪问题”(M = 2.03,标准差 = 2.28)和“实际问题”(M = 1.79,标准差 = 2.12)的影响最为显著。独立样本t检验显示,临床组家长的苦恼程度显著高于典型组家长(P < 0.001),证实了《家长苦恼温度计》的敏感性和有效性。希腊语版的《家长苦恼温度计》是评估患有喂养和吞咽困难儿童家长苦恼的可靠有效工具。本研究强调,与发育正常儿童的家长相比,这些家长的苦恼程度明显更高,凸显了提供针对性支持的必要性。

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