普通人群对慢性和危及生命疾病患者信息的态度：一项横断面研究。

Attitudes of the General Population Regarding Patient Information for a Chronic and Life-Threatening Disease: A Cross-Sectional Study.

机构信息

National School of Public Administration and Local Government, Athens, Greece.

School of Economics and Political Sciences, MHSc, Petroupoli, Athens, Greece.

出版信息

Adv Exp Med Biol. 2021;1337:177-184. doi: 10.1007/978-3-030-78771-4_20.

DOI:10.1007/978-3-030-78771-4_20

PMID:34972904

Abstract

BACKGROUND

The form of communication developed between the physician and the patient and between the physician and the patient's close relatives builds the foundation for the process of announcing unpleasant news, which is related to the diagnosis of chronic disease. The aim of this study was to investigate the attitudes of the general population regarding the information of patients for a chronic and life-threatening disease.

METHODS

It is a cross-sectional study. An anonymous questionnaire was used on a sample of 350 people.

RESULTS

The 95.1% of participants considered that patients have the right to be fully informed about their health status and that the physician has the right to be informed. The 90.3% of the respondents argued that patients differ in their preferences. Totally, 60.3% of participants agreed that all patients would like to know the bad news about their health, while 44.5% argued that patients do not want to hear bad news about their health, and 32.3% believed that patients should be protected from the announcement of bad news. The majority of respondents (95.6%) were informed by the physician about their or their relevant chronic disease.

CONCLUSIONS

The general population is of the opinion that patients should be informed about their health status. Due to the fact that each patient responds differently to the announcement of the unpleasant news, the respondents replied that the announcement of the unpleasant news should be personalized and carried out by the physician.

摘要

背景

医生与患者之间以及医生与患者近亲之间建立的沟通形式为宣布慢性疾病诊断相关的不良消息奠定了基础。本研究旨在调查普通人群对慢性和危及生命的疾病患者信息的态度。

方法

这是一项横断面研究。我们对 350 名参与者进行了一项匿名问卷调查。

结果

95.1%的参与者认为患者有权全面了解自己的健康状况，且医生有权知情。90.3%的受访者认为患者的偏好存在差异。总的来说，60.3%的参与者同意所有患者都希望了解有关其健康状况的坏消息，而 44.5%的参与者认为患者不希望听到有关其健康状况的坏消息，32.3%的参与者认为患者应避免获悉坏消息。大多数受访者（95.6%）从医生那里了解了他们或他们相关的慢性疾病。