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患有痴呆症的黑人、拉丁裔和白人的未满足需求及养老院安置情况。

Unmet needs and nursing home placements in Black, Latino, and White people living with dementia.

作者信息

Travers Altizer Jasmine, Shenoy Shivani, Balaji Anisha, Bergh Marissa, Raval Aasha, Jimenez Andreina

机构信息

Rory Meyers College of Nursing, New York University, New York, New York, USA.

School of Global Public Health, New York University, New York, New York, USA.

出版信息

Alzheimers Dement. 2025 Jun;21(6):e70265. doi: 10.1002/alz.70265.

DOI:10.1002/alz.70265
PMID:40566753
Abstract

BACKGROUND

Many nursing home (NH) placements are avoidable considering equivalent care is possible in community settings.

METHODS

This qualitative descriptive study explored the unmet needs and related barriers that drive avoidable NH placements among Black, Hispanic/Latino, and White persons living with dementia (PLWD). Interviews were conducted with PLWD, family care partners, and NH staff, from two New York NHs along with aging policy experts.

FINDINGS

Seven distinct themes specific to unmet needs emerged from interviews including (1) assistance with activities of daily living and basic home maintenance; (2) resources and services; (3) treatment-related services; (4) socialization; (5) individual preferences; (6) function of the home (e.g., unaddressed home modification needs); and (7) equipped, available, and supported family. Barriers contributing to unmet needs included awareness, knowledge, availability, affordability, and acceptability of resources, services, and supports.

DISCUSSION

Strategies to address these unmet needs and improve community-based services may help reduce these NH placements.

HIGHLIGHTS

Many people living with dementia can remain at home with necessary supports. There is limited paid and unpaid assistance to support people living with dementia. Navigating the complex landscape of services in the community is challenging.

摘要

背景

考虑到在社区环境中可以提供同等的护理,许多养老院安置是可以避免的。

方法

这项定性描述性研究探讨了生活在纽约州两家养老院的黑人、西班牙裔/拉丁裔和白人痴呆症患者(PLWD)中,导致可避免的养老院安置的未满足需求和相关障碍。研究人员对痴呆症患者、家庭护理伙伴、养老院工作人员以及老年政策专家进行了访谈。

结果

访谈中出现了七个与未满足需求相关的不同主题,包括:(1)日常生活活动和基本家庭维护方面的协助;(2)资源和服务;(3)治疗相关服务;(4)社交活动;(5)个人偏好;(6)家庭功能(例如,未解决的家庭改造需求);以及(7)有能力、可提供支持的家庭。导致需求未得到满足的障碍包括资源、服务和支持的认知度、知识水平、可获得性、可承受性和可接受性。

讨论

解决这些未满足需求并改善社区服务的策略可能有助于减少养老院安置。

要点

许多痴呆症患者在获得必要支持的情况下可以留在家中。支持痴呆症患者的有偿和无偿援助有限。在社区中应对复杂的服务体系具有挑战性。

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