Abdallah Jean Pierre, Morel Sara B A, Soboleva Nataliya, Quan Jessica, Price Chella, Goldfarb Michael
Division of Experimental Medicine, Department of Medicine, McGill University, Montreal, Quebec, Canada.
Faculty of Medicine and Health Sciences, McGill University, Montreal, Quebec, Canada.
CJC Open. 2025 Mar 11;7(6):743-749. doi: 10.1016/j.cjco.2025.03.007. eCollection 2025 Jun.
Engaging families in care is an important aspect of healthcare delivery. Our interdisciplinary team designed the NGAGE (for "family eNGAGEment") tool to empower family members to increase their engagement in patient care. The objective of this study was to assess the feasibility of use of the NGAGE tool.
We conducted a single-centre, pilot, feasibility randomized controlled trial in the acute cardiac unit of a tertiary-care academic hospital. Family members of admitted patients were randomized in a 1:1 manner to the intervention (use of the NGAGE tool) or usual-care group. Intervention group participants could request engagement activities using the NGAGE tool and this request was transmitted to the treating healthcare team. At enrollment, demographics and family engagement scores were captured. At discharge, data on care satisfaction, mental health, and engagement were collected. Recruitment rate, intervention uptake, tool use, requests fulfilled, and follow-up rate were used to assess feasibility outcomes.
A total of 88 participants (45 intervention, 43 control) were included in the analysis. The mean recruitment rate was 2.9 participants per week. In the intervention group, 69% of participants used the NGAGE tool (1.5 ± 0.9 uses per participant). Most engagement requests (39 of 47; 83.0%) were fulfilled. Follow-up data were available for 76% of participants (67 of 88). Family members who used the NGAGE tool improved their family engagement score. No between-group differences occurred in mental health or satisfaction at follow-up (all > 0.05).
We found evidence to suggest that implementation of the NGAGE tool was feasible. The results will inform the design of a multicentre effectiveness trial of use of the NGAGE tool.
NCT05528185.
让家庭参与医疗护理是医疗服务提供的一个重要方面。我们的跨学科团队设计了NGAGE(意为“家庭参与”)工具,以使家庭成员能够更多地参与患者护理。本研究的目的是评估使用NGAGE工具的可行性。
我们在一家三级医疗学术医院的急性心脏科进行了一项单中心、试点、可行性随机对照试验。将入院患者的家庭成员以1:1的方式随机分为干预组(使用NGAGE工具)或常规护理组。干预组参与者可使用NGAGE工具请求参与活动,该请求会传达给主治医疗团队。在入组时,收集人口统计学和家庭参与度评分。在出院时,收集有关护理满意度、心理健康和参与度的数据。招募率、干预接受率、工具使用情况、请求完成情况和随访率用于评估可行性结果。
共有88名参与者(45名干预组,43名对照组)纳入分析。平均招募率为每周2.9名参与者。在干预组中,69%的参与者使用了NGAGE工具(每位参与者使用1.5±0.9次)。大多数参与请求(47项中的39项;83.0%)得到了满足。76%的参与者(88名中的67名)有随访数据。使用NGAGE工具的家庭成员提高了他们的家庭参与度评分。随访时心理健康或满意度方面无组间差异(均>0.05)。
我们发现有证据表明实施NGAGE工具是可行的。这些结果将为NGAGE工具多中心有效性试验的设计提供参考。
NCT05528185。