Wang Danqi, Yan Siyu, Fan Manru, Xue Hongyang, Yu Linxin, Huang Qiao, Shi Yuexian, Jin Yinghui, Zeng Xian-Tao
Center for Evidence-Based and Translational Medicine, Zhongnan Hospital of Wuhan University, Wuhan, 430071, China.
Department of Urology, Zhongnan Hospital of Wuhan University, Wuhan, 430071, China.
BMC Cancer. 2025 Jul 1;25(1):1120. doi: 10.1186/s12885-025-14510-4.
To explore preferred and experienced roles and their congruence among Chinese cancer patients in decision making with their doctors and families.
We used the adapted Control Preferences Scale to identify preferred and experienced roles of patients in decision-making. Multivariate logistic regression analysis was performed to evaluate the effects of cancer types and family involvement on patients' decision-making roles with doctors.
A total of 1264 respondents were included. The percentage of respondents preferring patient-led, shared or doctor-led roles in decision-making with doctors was 44.0%, 39.8%, and 16.2%, respectively. The percentage of respondents experiencing patient-led, shared or doctor-led roles in decision-making with doctors was 56.7%, 32.5%, and 10.8%, respectively. The concordance between preference and experience was moderate (κ = 0.41). Most of respondents preferred (77.14%) and experienced (70.89%) shared decision making with their families. Breast cancer patients preferred and experienced passive roles (P < 0.01), and uterine cancer patients reported that their experience was less active than their preference (P < 0.01).
Most Chinese cancer patients actively or collaboratively participated in decision-making with their doctors. Additionally, the majority of patients preferred and experienced shared decision-making with their families. Patients with uterine cancer indicated an unsatisfied desire to participate in decision-making, while those with breast cancer tended to be more passive.
探讨中国癌症患者在与医生和家人共同决策时倾向的角色及实际经历的角色，以及二者的一致性。
我们使用改编后的控制偏好量表来确定患者在决策过程中倾向的角色和实际经历的角色。进行多因素逻辑回归分析，以评估癌症类型和家庭参与对患者与医生决策角色的影响。
共纳入1264名受访者。在与医生决策时，倾向于患者主导、共同主导或医生主导角色的受访者比例分别为44.0%、39.8%和16.2%。在与医生决策时实际经历患者主导、共同主导或医生主导角色的受访者比例分别为56.7%、32.5%和10.8%。偏好与经历之间的一致性为中等（κ = 0.41）。大多数受访者（77.14%）倾向于并（70.89%）实际经历了与家人共同决策。乳腺癌患者倾向于并实际经历被动角色（P < 0.01），子宫癌患者表示其实际经历的参与度低于其偏好（P < 0.01）。
大多数中国癌症患者积极或协作地参与与医生的决策。此外，大多数患者倾向于并实际经历了与家人共同决策。子宫癌患者表示参与决策的愿望未得到满足，而乳腺癌患者往往更为被动。
