Boakye Priscilla N, Prendergast Nadia, Bacchini Fabiana, Thomas Obewu Ola Abanta, Hayrabedian Victoria
Daphne Cockwell School of Nursing, Toronto Metropolitan University, Toronto, Ontario, Canada.
Canadian Premature Babies Foundation, Toronto, Ontario, Canada.
J Adv Nurs. 2025 Jul 4. doi: 10.1111/jan.70049.
To explore the experiences and support needs of Black Canadian parents with preterm infants and to engage them in co-creating a culturally informed framework to inform nurses, healthcare providers and community organisations to better serve this population.
Preterm birth (PTB) is a traumatic experience that places significant physical and emotional strain on families and other caregivers. Despite research showing that Black mothers are at risk of PTB, little is known about their experiences of giving birth to a preterm infant and the challenges they encounter caring for these children in Canada. This lack of research specifically on Black parents in Canada makes it difficult to identify their psychosocial needs and develop intervention programmes to address their unique challenges.
A two-phase qualitative exploratory design informed by a community engagement lens will be used.
In Phase 1, five focus groups (n = 48) and 6-8 in depth interviews will be conducted with Black parents of preterm infants. Questions will explore experiences in the NICU, transition home, access to support, coping strategies and mental well-being. One focus group will be conducted with the parent advisory council of the Canadian Premature Babies Foundation, our community partner to explore gaps in services. The data from Phase 1 will be analysed and findings will be used to informed Phase 2 concept mapping exercise. This research was approved by the Toronto Metropolitan University Research Ethics Board.
There is a paucity of research addressing the experiences and needs of Black parents with preterm infants. Thus, this study is well positioned to generate the much-needed Canadian empirical knowledge on the unique experiences and stressors face by Black parents with preterm infants and inform the design of programmes and services to better support them.
This study is in collaboration with the Canadian Premature Babies Foundation, our community partner.
探讨加拿大黑人早产婴儿父母的经历和支持需求，并让他们共同创建一个具有文化内涵的框架，以指导护士、医疗服务提供者和社区组织更好地服务这一群体。
早产是一种创伤性经历，会给家庭和其他照顾者带来巨大的身心压力。尽管研究表明黑人母亲有早产风险，但对于她们生下早产婴儿的经历以及在加拿大照顾这些孩子时遇到的挑战却知之甚少。缺乏针对加拿大黑人父母的具体研究使得难以确定他们的心理社会需求，也难以制定干预计划来应对他们的独特挑战。
将采用基于社区参与视角的两阶段定性探索性设计。
在第一阶段，将与早产婴儿的黑人父母进行5个焦点小组访谈（n = 48）和6 - 8次深度访谈。问题将探讨在新生儿重症监护病房的经历、回家过渡、获得支持的情况、应对策略和心理健康。将与我们的社区合作伙伴加拿大早产婴儿基金会的家长咨询委员会进行一次焦点小组访谈，以探索服务差距。将对第一阶段的数据进行分析，并将结果用于为第二阶段的概念映射练习提供信息。本研究已获得多伦多都会大学研究伦理委员会的批准。
针对早产婴儿黑人父母的经历和需求的研究很少。因此，本研究很有条件生成关于早产婴儿黑人父母独特经历和压力源的急需的加拿大实证知识，并为更好地支持他们的项目和服务设计提供信息。
本研究与我们的社区合作伙伴加拿大早产婴儿基金会合作。
