口腔健康公平数据收集的观点与经验：一项定性研究
Perspectives and experiences with equitable data collection in oral health: a qualitative investigation.
作者信息
Schroeder Kelly L, Heaton Lisa J, Martin Paige, Cheung Hannah J, Tranby Eric P, Rafia Kaz, Tiwari Tamanna
机构信息
Program Evaluation Specialist, Analytics and Data Insights, CareQuest Institute for Oral Health, 465 Medford Street, Suite 500, Boston, MA, 02129, USA.
Science Writer, Analytics and Data Insights, CareQuest Institute for Oral Health, 465 Medford Street, Suite 500, Boston, MA, 02129, USA.
出版信息
BMC Oral Health. 2025 Jul 4;25(1):1090. doi: 10.1186/s12903-025-06388-2.
BACKGROUND
Although there has been progress in recent years, oral health data collection processes are still generally not inclusive of all people. This phenomenological qualitative study explores equitable oral health data collection in the United States by interviewing individuals often excluded due to race, ethnicity, language, disability, sexual orientation, and gender identity. The purpose of this study is to explore challenges related to equitable data collection in oral health research.
METHODS
A phenomenological qualitative approach was utilized which included a convenience sample of individuals with varied demographic backgrounds and engaged in population health efforts to improve access to oral health. Focus groups and semi-structured individual interviews were conducted virtually. Thematic analysis was used to explore the data. Rigor and trustworthiness were added through team check-ins, memo writing, audit trail, and member checking.
RESULTS
Focus groups ( = 6 groups; 20 participants) and in-depth interviews ( = 3 participants) were comprised of interview participants. Four common themes were identified: challenges with access to oral health care, accurate identification of study participants, intersection of demographic descriptors, and suggestions for improving equitable data collection.
CONCLUSION
Oral health data collection processes do not always allow individuals to describe what they perceive as important aspects of their identity. Through this qualitative exploration, study participants shared challenges and provided suggestions for improving oral health data collection that allows for more accurate identification of research participants. Based on these interviews, we recommend oral health researchers provide multiple response options, allow research participants to ‘select all that apply,’ and provide open-ended text boxes for respondents to provide additional detail as needed.
SUPPLEMENTARY INFORMATION
The online version contains supplementary material available at 10.1186/s12903-025-06388-2.
背景
尽管近年来取得了进展，但口腔健康数据收集过程通常仍未涵盖所有人。这项现象学定性研究通过采访那些因种族、民族、语言、残疾、性取向和性别认同而经常被排除在外的个体，探索美国公平的口腔健康数据收集情况。本研究的目的是探讨口腔健康研究中与公平数据收集相关的挑战。
方法
采用现象学定性方法，包括一个具有不同人口背景且参与改善口腔健康可及性的人群健康工作的个体便利样本。焦点小组和半结构化个人访谈通过线上方式进行。采用主题分析法探索数据。通过团队检查、撰写备忘录、审计追踪和成员核对来增强严谨性和可信度。
结果
焦点小组（共6组；20名参与者）和深度访谈（共3名参与者）由访谈参与者组成。确定了四个共同主题：获得口腔医疗服务的挑战、研究参与者的准确识别、人口统计学描述符的交叉以及改善公平数据收集的建议。
结论
口腔健康数据收集过程并不总是允许个体描述他们认为是其身份重要方面的内容。通过这种定性探索，研究参与者分享了挑战，并为改善口腔健康数据收集提供了建议，以便更准确地识别研究参与者。基于这些访谈，我们建议口腔健康研究人员提供多种回答选项，允许研究参与者“选择所有适用项”，并为受访者提供开放式文本框，以便他们根据需要提供更多细节。
补充信息
在线版本包含可在10.1186/s12903 - 025 - 06388 - 2获取的补充材料。
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