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确定造口术患者对耻辱感的认知。

Determining the perception of stigma of individuals with ostomies.

作者信息

Karahan Azize, Çıtak Ebru Akgün, Çevik Banu, Abbasoğlu Aysel, Uğurlu Ziyafet

机构信息

Department of Nursing, Faculty of Health Science, Başkent University, Baglıca Kampüsü Fatih Sultan Mahallesi Eskişehir Yolu 18.km TR, 06790, Etimesgut, Ankara, Turkey.

出版信息

BMC Psychol. 2025 Jul 10;13(1):767. doi: 10.1186/s40359-025-03112-1.

Abstract

PURPOSE

The aim of the study is to determine the stigmatization perceived by individuals with intestinal ostomy to recognize these issues and assist them in the adjustment to having an ostomy.

METHODS

The study is descriptive and qualitative study. Interviews were conducted with a total of 14 individuals who were able to communicate, and had a permanent intestinal ostomy in the outpatient center of a university hospital. The content analysis method was used in data analysis.

RESULTS

Three main themes and seven subthemes were identified. The main themes were "perceived stigma", "changes in life" and "emotional responses". The majority of the patients experienced internalized stigma.

CONCLUSION

In this study, individuals with intestinal ostomies perceveid both internalized and experienced stigma. Negative feelings with perceived stigma restricted social lives, decreased relationships with relatives, neighbors, and friends, reduced the desire to go out and negatively affected body image and sexual life. Education programs can be organized to help them cope with this situation.

摘要

目的

本研究旨在确定肠造口患者所感受到的污名化情况,以认识这些问题并帮助他们适应造口生活。

方法

本研究为描述性定性研究。共对14名能够交流且在某大学医院门诊中心有永久性肠造口的患者进行了访谈。数据分析采用内容分析法。

结果

确定了三个主要主题和七个子主题。主要主题为“感知到的污名”“生活变化”和“情绪反应”。大多数患者经历了内化污名。

结论

在本研究中,肠造口患者既感受到了内化污名,也经历了实际污名。感知到的污名带来的负面情绪限制了社交生活,减少了与亲戚、邻居和朋友的往来,降低了外出意愿,并对身体形象和性生活产生了负面影响。可以组织教育项目来帮助他们应对这种情况。

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