Ellis Julie, Atkinson Louise, Glover Suzanne, Kettle Jennifer, Joseph Grace, Hale Jamie, Jones Amanda, Coles Mitch, Bligh Libby, Bridgens Ruth, O'Kane Conor, Negus Jenny, Ali Haffizah, Thompson Connor, Waters Sarah, Coats Casey, Gibson Barry J, Weiner Kate, Lawson Rod, Liddiard Kirsty
School of Education, The University of Sheffield, Sheffield, United Kingdom.
School of Clinical Dentistry, The University of Sheffield, Sheffield, United Kingdom.
Front Sociol. 2025 Jun 26;10:1600693. doi: 10.3389/fsoc.2025.1600693. eCollection 2025.
Our contributions within this article emerge from our experiences of co-leading a new Wellcome Discovery Award funded project, . As a diverse team of clinicians, artists, academics and others with lived and embodied experience of disability, chronic illness, and neurodivergence, we are broadly exploring breathing and ventilation (e.g., forms of medical technology that support respiration) through arts-informed, archival, narrative and ethnographic research approaches.
Cripping Breath aims to forge new understandings of respiration from crip perspectives, which unapologetically center disability as a valued human experience. In this article, we unpack the meanings, politics and practices of crip perspectives and methodologies - forms of knowledge production that emerge from lived and embodied experiences of disability and chronic illness - and consider their contributions to our project so far. We think through crip time, Slow scholarship and (seemingly) radical things like rest and recuperation, and grief and loss within the research process.
We share the importance of embracing flexibility, adaptability and radical care as routine across our team, because we all bring various types of impairment, embodiment, chronic illness, and caring responsibilities.
We question the meanings of these forms of disability, impairment and difference as ways to develop radical and cripcultures of co-produced and innovative disability research methodologies, and conclude by calling for a more inclusive sociology.
我们在本文中的贡献源于共同领导一个由惠康发现奖资助的新项目的经历。作为一个由临床医生、艺术家、学者以及其他有残疾、慢性病和神经差异生活及身体体验的人组成的多元化团队,我们正在通过艺术启发、档案研究、叙事研究和人种志研究方法广泛探索呼吸与通气(例如支持呼吸的医疗技术形式)。
“残疾呼吸”旨在从残疾视角形成对呼吸的新理解,这种视角毫不掩饰地将残疾作为一种有价值的人类体验置于中心位置。在本文中,我们剖析残疾视角和方法的意义、政治及实践——这些知识生产形式源自残疾和慢性病的生活及身体体验——并思考它们到目前为止对我们项目的贡献。我们深入思考残疾时间、慢学术以及研究过程中诸如休息与恢复、悲伤与失落等(看似)激进的事情。
我们强调在整个团队中常规性地接受灵活性、适应性和激进关怀的重要性,因为我们都带着各种类型的损伤、身体状况、慢性病以及关怀责任。
我们质疑这些残疾、损伤和差异形式的意义,以此来发展共同生产和创新的残疾研究方法的激进和残疾文化,并呼吁建立更具包容性的社会学作为结语。