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先天性心脏病成人的心脏康复、术前康复及心血管预防:德国养老保险的任务与服务 - 第2部分:心脏康复

Cardiological rehabilitation, prehabilitation, and cardiovascular prevention in adults with congenital heart defects: tasks and services of the German Pension Insurance-part 2: cardiological rehabilitation.

作者信息

Barth Juliane, Dewald Oliver, Ewert Peter, Freiberger Annika, Freilinger Sebastian, Gampert Tobias, Harig Frank, Hörer Jürgen, Holdenrieder Stefan, Huntgeburth Michael, Kaemmerer-Suleiman Ann-Sophie, Kohls Niko, Nagdyman Nicole, Neidenbach Rhoia, Schmiedeberg Wolfgang, Suleiman Mathieu N, von Scheidt Fabian, Koch Detlef, Wagener Wolfgang, Mentzner Dirk, Mellert Fritz, Kaemmerer Harald

机构信息

Department of Congenital Heart Disease and Pediatric Cardiology, German Heart Centre Munich, TUM University Hospital, Munich, Germany.

Department of Cardiac Surgery, Universitätsklinikum Erlangen, Friedrich-Alexander-Universität Erlangen-Nürnberg, Erlangen, Germany.

出版信息

Cardiovasc Diagn Ther. 2025 Jun 30;15(3):696-704. doi: 10.21037/cdt-2024-692. Epub 2025 Jun 25.

Abstract

Congenital heart defects (CHD) represent the most common inborn organ anomaly, with more than a million newborns affected annually. Advances in diagnostics and treatment have led to significantly improved survival rates, resulting in a growing population of an estimated 50 million adults with congenital heart defects (ACHD) worldwide. As these individuals age, they often face a high burden of morbidity and complex long-term health challenges that require specialized, lifelong care. In this context, cardiological rehabilitation (CR) becomes increasingly important, not only to reduce morbidity but also to enhance patients' quality of life and support their social and occupational integration. While CR has been extensively studied and implemented for acquired heart diseases, structured rehabilitation programs tailored to the specific needs of ACHD remain limited in clinical practice and in the scientific literature. Globally, both the availability of CR and the presence of structured concepts vary widely. CR is predominantly offered in high-income countries, with Western Europe providing the most extensive services. In many low- and middle-income countries, access to CR remains limited or is sometimes not available at all. However, even in high-income settings, targeted ACHD programs are scarce, meaning that many ACHD are treated in general CR programs that do not adequately address the complexity of CHD. The present article outlines the core components of CR, provides recommendations on how these are implemented in current practice, identifies existing limitations, and discusses how services could be better aligned with the complex medical and psychosocial needs of ACHD. It also describes the role of the German Pension Insurance in funding and providing rehabilitation services in Germany. Tailored rehabilitation programs, greater integration of ACHD expertise, and targeted research are essential to improve long-term outcomes and establish patient-centered care structures for the growing ACHD population. In this way, the present paper is intended to support the development of rehabilitation programs for countries where such structures currently do not exist.

摘要

先天性心脏病(CHD)是最常见的先天性器官异常,每年有超过100万新生儿受其影响。诊断和治疗方面的进展显著提高了生存率,导致全球估计有5000万患有先天性心脏病的成年人(ACHD)数量不断增加。随着这些人年龄的增长,他们常常面临高发病负担和复杂的长期健康挑战,需要专门的终身护理。在这种背景下,心脏康复(CR)变得越来越重要,不仅可以降低发病率,还能提高患者的生活质量,并支持他们融入社会和职业生活。虽然CR已针对后天性心脏病进行了广泛研究和实施,但针对ACHD特殊需求的结构化康复计划在临床实践和科学文献中仍然有限。在全球范围内,CR的可及性和结构化概念的存在差异很大。CR主要在高收入国家提供,西欧提供的服务最为广泛。在许多低收入和中等收入国家,获得CR的机会仍然有限,有时甚至根本无法获得。然而,即使在高收入地区,针对性的ACHD计划也很少,这意味着许多ACHD患者是在一般的CR计划中接受治疗的,这些计划无法充分应对CHD的复杂性。本文概述了CR的核心组成部分,就如何在当前实践中实施这些组成部分提供了建议,指出了现有局限性,并讨论了如何使服务更好地符合ACHD复杂的医疗和心理社会需求。它还描述了德国养老保险在德国资助和提供康复服务方面的作用。量身定制的康复计划、更好地整合ACHD专业知识以及针对性研究对于改善长期结果和为不断增加的ACHD人群建立以患者为中心的护理结构至关重要。通过这种方式,本文旨在支持目前尚无此类结构的国家开展康复计划。

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