Martini Nafiza, Almouallem Mohamad Moamen, Hanna Majd, Jabra Maya, Ahmad Hiyam, Almasri Imad-Addin, Al-Ghotani Basel, Alshawa Kinda
Faculty of Medicine, Damascus University, Damascus, Syrian Arab Republic.
Stemosis for Scientific Research, Damascus, Syrian Arab Republic.
Sci Rep. 2025 Jul 14;15(1):25407. doi: 10.1038/s41598-025-10328-z.
Our objective was to evaluate the subjective well-being of Syrian patients with psoriasis using a validated assessment tool. In particular, we aimed to examine the relationship between clinical factors, such as disease severity, and subjective well-being. Furthermore, we investigated how demographic characteristics and socioeconomic status affect patients' subjective well-being. This cross-sectional study included 402 participant and was conducted among Syrian psoriasis patients from October 26th, 2023, to December 15th, 2023. A trained team collected data via social media platforms (e.g., Facebook, WhatsApp) from eligible participants and distributed printed questionnaires to psoriasis patients in Syrian dermatology clinics and hospitals. We used a questionnaire developed based on medical literature and used different scales like, the self-assessed simplified psoriasis Index (saSPI), satisfaction with life (SWL), and the Arabic version of the Scale of Positive and Negative Experience (SPANE), to measure study variables. We noted that patient severity scores are higher in males compared to females. Additionally, lower socioeconomic status was also associated with higher disease severity scores, higher psychosocial scores of the saSPI. Our findings highlight the importance of considering demographic factors and clinical characteristics in the treatment of psoriasis. We recommend adopting a holistic approach to clinical practice that addresses these factors in order to improve patient outcomes, enhance subjective well-being, and inform the. analysis of public policies and social security systems.
我们的目标是使用经过验证的评估工具来评估叙利亚银屑病患者的主观幸福感。具体而言，我们旨在研究疾病严重程度等临床因素与主观幸福感之间的关系。此外，我们还调查了人口统计学特征和社会经济地位如何影响患者的主观幸福感。这项横断面研究纳入了402名参与者，于2023年10月26日至2023年12月15日在叙利亚银屑病患者中开展。一个经过培训的团队通过社交媒体平台（如脸书、WhatsApp）从符合条件的参与者那里收集数据，并向叙利亚皮肤科诊所和医院的银屑病患者发放纸质问卷。我们使用了一份基于医学文献编制的问卷，并使用了不同的量表，如自我评估简化银屑病指数（saSPI）、生活满意度（SWL）以及阿拉伯语版的正负体验量表（SPANE），来测量研究变量。我们注意到，男性患者的严重程度评分高于女性。此外，社会经济地位较低也与较高的疾病严重程度评分、saSPI较高的心理社会评分相关。我们的研究结果凸显了在银屑病治疗中考虑人口统计学因素和临床特征的重要性。我们建议在临床实践中采用整体方法来处理这些因素，以改善患者预后、提升主观幸福感，并为公共政策和社会保障系统的分析提供参考。
