Bansal-Travers Maansi, Carl Ellen, Mullin Sarah, Hyland Andrew, Rodriguez Elisa M
Department of Health Behavior, Roswell Park Comprehensive Cancer Center, Buffalo, NY 14263, United States.
Department of Biostatistics and Bioinformatics, Roswell Park Comprehensive Cancer Center, Buffalo, NY 14263, United States.
J Natl Cancer Inst Monogr. 2025 Jul 1;2025(69):96-102. doi: 10.1093/jncimonographs/lgaf008.
Substantial gaps exist in person-centered care to patients who identify as sexual and gender minorities. This project's main objective was to understand acceptability, feasibility, assets, and challenges around implementation of standardized sexual orientation and gender identity measures at the patient, provider, and organizational level at one National Cancer Institute-designated comprehensive cancer center. This analysis focuses on sexual orientation and gender identity data collected from October 2023 to October 2024. In addition, qualitative interviews were conducted with 100 patients and 30 clinicians to evaluate the impact of these questions on clinical experience. This study found that most patients provided valid responses to gender identity, sex at birth, relationship status, preferred name, preferred pronouns, and sexual orientation questions. Examination of the qualitative data suggests 3 main themes: support for sexual orientation and gender identity measures, appreciate inclusivity, and concern about sexual orientation and gender identity measures and implications for care. Findings from this study can contribute to the foundation for evidence-based recommendations for sexual orientation and gender identity data collection to provide cancer care that meets the needs of this medically underserved community.
在为认定自己为性少数和性别少数群体的患者提供以患者为中心的护理方面，存在着巨大差距。本项目的主要目标是了解在一家美国国立癌症研究所指定的综合癌症中心，在患者、医护人员和组织层面实施标准化性取向和性别认同测量的可接受性、可行性、优势及挑战。本分析聚焦于2023年10月至2024年10月收集的性取向和性别认同数据。此外，还对100名患者和30名临床医生进行了定性访谈，以评估这些问题对临床体验的影响。本研究发现，大多数患者对性别认同、出生时性别、关系状况、首选名字、首选代词和性取向问题给出了有效回答。对定性数据的审视揭示了3个主要主题：对性取向和性别认同测量的支持、对包容性的认可，以及对性取向和性别认同测量及其护理影响的担忧。本研究结果可为基于证据的性取向和性别认同数据收集建议奠定基础，从而提供满足这个医疗服务不足群体需求的癌症护理。
