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综合癌症中心收集性取向和性别认同患者数据的实施因素:ASK性取向和性别认同研究全中心准备情况评估调查的结果

Implementation factors for sexual orientation and gender identity patient data collection in a comprehensive cancer center: findings from a center-wide readiness assessment survey for the ASK Sexual Orientation and Gender Identity study.

作者信息

Kano Miria, Sklar Marisa, O'Connell Ryan, Guest Dolores, Farnbach Pearson Amy, Sussman Andrew L, Tawfik Bernard, Dayao Zoneddy, Crandall Cameron, Willging Cathleen

机构信息

Office of Engagement, Access and Success, University of Colorado Comprehensive Cancer Center, Aurora, CO, United States.

Department of Community and Behavioral Health, University of Colorado School of Public Health, Aurora, CO 80045, United States.

出版信息

J Natl Cancer Inst Monogr. 2025 Jul 1;2025(69):117-120. doi: 10.1093/jncimonographs/lgaf009.

Abstract

Between September 2022 and August 2024, a mixed-method study was conducted at the University of New Mexico Comprehensive Cancer Center to enhance sexual orientation and gender identity data collection to facilitate meaningful use of sexual orientation and gender identity data in clinical care for sexual and gender minority patients. This report presents findings from a center-wide readiness assessment survey to identify and analyze the complex challenges affecting sexual orientation and gender identity data collection implementation. Over a 1.5-month period, a REDCap online survey was distributed to assess organizational and individual readiness to implement and expand on the collection of sexual orientation and gender identity data at the cancer center. The survey consisted of 4 widely used readiness measures: Organizational Readiness for Implementing Change; Implementation Leadership Scale; Implementation Climate Scale; and an adapted version of the Lesbian, Gay, Bisexual, Transgender, Queer (or Questioning), Intersex Health Knowledge, Attitudes and Practice Scale. Findings specific to perceived gaps in leadership support and resource provision informed multilevel strategies to improve sexual orientation and gender identity data collection and use.

摘要

2022年9月至2024年8月期间,新墨西哥大学综合癌症中心开展了一项混合方法研究,以加强性取向和性别认同数据的收集,促进性取向和性别认同数据在性少数和性别少数患者临床护理中的有效利用。本报告展示了一项全中心准备情况评估调查的结果,以识别和分析影响性取向和性别认同数据收集实施的复杂挑战。在1.5个月的时间里,通过REDCap在线调查评估了该癌症中心在组织和个人层面上实施和扩大性取向和性别认同数据收集的准备情况。该调查包括4项广泛使用的准备情况衡量指标:实施变革的组织准备情况;实施领导力量表;实施氛围量表;以及女同性恋、男同性恋、双性恋、跨性别者、酷儿(或疑问者)、双性人健康知识、态度和实践量表的改编版。针对领导支持和资源提供方面的明显差距所获得的调查结果,为改进性取向和性别认同数据的收集和使用提供了多层次策略。

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