Washington Ariel, Toman Lindsay, Fakih Ali, Ayoub Riham, Noble Emma, Musto Susan, Dowe Brittany, Ellis Scott, Sakleh Andrea, Thompson Hayley S, Riddle-Jones Latonya
Department of Oncology, Wayne State University School of Medicine, Detroit, MI, United States.
LGBTQ Studies, Colgate University, Hamilton, NY, United States.
J Natl Cancer Inst Monogr. 2025 Jul 1;2025(69):88-95. doi: 10.1093/jncimonographs/lgaf027.
More than 13 million adults in the United States identify as a sexual or gender minority (SGM). This study aimed to describe the barriers and facilitators to SOGI data collection in health-care settings, looking to understand current and past practices with a goal of improving future data collection. With the aid of community-based organizations (CBOs) focused either on cancer or LGBTQ+ issues, 31 individuals were recruited to participate in 4 focus groups. Focus groups were analyzed using thematic analysis, and 5 themes were identified: barriers to SOGI data collection; facilitators to SOGI data collection; discrimination; disclosing SOGI status; shifting landscape of SOGI status and data collection; and practical experiences of SOGI data collection. More than half of the participants identified as Black/African American, and the majority of focus groups participants were sexual or gender minorities. Our study identified gaps in current SOGI data collection practices, experiences of harm in disclosure, and areas for growth and improvement in the overall health experiences for SGM individuals.
在美国，超过1300万成年人认定自己属于性取向或性别少数群体（SGM）。本研究旨在描述医疗保健环境中性取向和性别认同（SOGI）数据收集的障碍与促进因素，通过了解当前及过去的做法，以改进未来的数据收集工作。借助专注于癌症或LGBTQ+问题的社区组织（CBO），招募了31人参与4个焦点小组。采用主题分析法对焦点小组进行分析，确定了5个主题：SOGI数据收集的障碍；SOGI数据收集的促进因素；歧视；披露SOGI身份；SOGI身份和数据收集情况的变化；以及SOGI数据收集的实际经验。超过一半的参与者认定自己为黑人/非裔美国人，焦点小组的大多数参与者是性取向或性别少数群体。我们的研究发现了当前SOGI数据收集做法中的差距、披露过程中的伤害经历，以及SGM个体在整体健康体验方面的成长和改进领域。
