Guan Alice, Duffy Christine, Loya Zinnia, Wadhwa Michelle, Gomez Scarlett Lin, Shariff-Marco Salma
Department of Epidemiology and Biostatistics, University of California, San Francisco (UCSF), San Francisco, CA, United States.
Helen Diller Family Comprehensive Cancer Center, University of California, San Francisco (UCSF), San Francisco, CA, United States.
J Natl Cancer Inst Monogr. 2025 Jul 1;2025(69):111-116. doi: 10.1093/jncimonographs/lgaf014.
Collecting sexual orientation and gender identity (SOGI) data in healthcare settings is essential for addressing the unique health needs and cancer burden of this population. We conducted a qualitative study to assess institutional leadership and staff perspectives on collecting SOGI data, aiming to improve these processes within our academic medical center. In key informant interviews with 17 staff and leaders, we asked about current SOGI data collection practices and facilitators/barriers for implementing systematic data collection. We sought to understand staff experiences with SOGI data collection, comfort and willingness to collect these data, and challenges in broad implementation of SOGI data collection. Findings indicate need for: training on SOGI data collection to increase staff confidence in engaging with patients; clear workflows for when, how, and by whom SOGI data should be collected; and implementation of flexible approaches to data collection, while balancing patient privacy.
在医疗环境中收集性取向和性别认同（SOGI）数据对于满足该人群独特的健康需求和癌症负担至关重要。我们进行了一项定性研究，以评估机构领导和工作人员对收集SOGI数据的看法，旨在改善我们学术医疗中心内的这些流程。在对17名工作人员和领导的关键信息访谈中，我们询问了当前SOGI数据收集实践以及实施系统数据收集的促进因素/障碍。我们试图了解工作人员在SOGI数据收集方面的经验、收集这些数据的舒适度和意愿，以及在广泛实施SOGI数据收集方面的挑战。研究结果表明需要：进行SOGI数据收集培训，以增强工作人员与患者交流的信心；明确何时、如何以及由谁收集SOGI数据的工作流程；实施灵活的数据收集方法，同时平衡患者隐私。
