Patel Kinjal, Brisebois Amanda, Davison Sara N, Tate Jordan, Mirhosseini Noush, DeKock Ingrid, Burton-MacLeod Sarah, Labrie Martin, Mitri Mino, Sinnarajah Aynharan, Campbell-Scherer Denise, Tandon Puneeta
Division of Gastroenterology, Department of Medicine, University of Alberta, Edmonton, Canada.
Division of General Internal Medicine and Palliative Care, Department of Medicine, University of Alberta, Edmonton, Canada.
Can Liver J. 2025 Feb 12;8(2):276-279. doi: 10.3138/canlivj-2024-0022. eCollection 2025 May.
Liver cirrhosis carries high symptom burden and health care utilization. Palliative care (PC) has demonstrated improvements in symptom burden and overall quality of life. Despite this, PC remains underutilized in patients with chronic liver disease. As a step to bridge this gap, we developed cirrhosiscare.ca as an easy-to-access, evidence-, and expert consensus-based online PC resource for health care providers.
This short report describes the development of the health care practitioner 'Symptom Management' section of www.cirrhosiscare.ca, covering common symptoms (e.g., pain, pruritus, anxiety, depression, nausea/vomiting) experienced by patients with cirrhosis. A multidisciplinary team included representatives from hepatology, palliative care, pain management, psychiatry, pharmacy, and primary care. The project was carried out over four phases: Symptom selection, Material development, Website creation, and Feedback, revisions, and maintenance.
The cirrhosiscare.ca website was launched to the public on March 15, 2021. Twelve detailed content pages were developed alongside four end-of-life algorithms. The developed pages have been well received, and there are between 10,000 and 12,000 new users on the site each month.
The development of the cirrhosiscare.ca website is a digital strategy to increase awareness and access to evidence-based and expert consensus-based materials for PC. Ongoing dissemination and sustainability will include regular maintenance and updates to online content, links to inpatient care pathways, and incorporation within the Alberta one:carepath primary care initiative.
肝硬化给患者带来了沉重的症状负担，医疗保健资源的使用也较多。姑息治疗已证明可改善症状负担和整体生活质量。尽管如此，姑息治疗在慢性肝病患者中的应用仍未得到充分利用。为了弥合这一差距，我们开发了cirrhosiscare.ca，这是一个易于访问的、基于证据和专家共识的在线姑息治疗资源平台，供医疗保健提供者使用。
cirrhosiscare.ca网站于2021年3月15日向公众开放。同时开发了12个详细的内容页面以及4个临终算法。已开发的页面受到了广泛好评，该网站每月有10000至12000名新用户。
cirrhosiscare.ca网站的开发是一项数字战略，旨在提高对基于证据和专家共识的姑息治疗材料的认识并增加其获取途径。持续的传播和可持续性将包括定期维护和更新在线内容、与住院护理路径的链接，以及纳入艾伯塔省一体化护理路径初级保健倡议。
