Shiganami Takafumi, Saito Satoshi, Nakata Chihiro, Kobayashi Sayaka, Yoshimasu Haruo, Farooq Shaikh Mohd, Taniguchi Go, Kuramochi Izumi
Department of Psychiatry, Saitama Medical Center, Saitama Medical University, Saitama, Japan.
Department of Epileptology, National Center Hospital, National Center of Neurology and Psychiatry, Tokyo, Japan; Department of Neurology, Tokyo Women's Medical University School of Medicine, Tokyo, Japan.
Epilepsy Behav. 2025 Oct;171:110605. doi: 10.1016/j.yebeh.2025.110605. Epub 2025 Jul 19.
This study aimed to develop and validate the Japanese version of the Attitudes and Beliefs about Living with Epilepsy scale (ABLE-J), a multidimensional instrument to assess public stigma toward epilepsy in Japan. A cross-sectional online survey was conducted with 400 Japanese adults. The ABLE scale was translated and culturally adapted into Japanese. Confirmatory factor analysis (CFA) tested a four-factor model: Negative Stereotypes, Risk and Safety Concerns, Work and Role Expectations, and Personal Fear and Social Avoidance. Internal consistency was assessed with Cronbach's alpha. Validity was examined via correlations with the Public Attitudes Toward Epilepsy Scale (PATE-J), epilepsy knowledge, and cultural stigma. CFA showed marginal fit for the original 29-item model (Comparative Fit Index: CFI = 0.867, Tucker-Lewis Index: TLI = 0.853, Root Mean Square Error of Approximation: RMSEA = 0.091), while the revised 27-item model showed improved fit (CFI = 0.893, TLI = 0.880, RMSEA = 0.087). All subscales showed high internal consistency (Cronbach's alpha = 0.81-0.92 for the 29-item version; up to 0.94 for the 27-item version). The ABLE-J score correlated positively with the PATE-J (r = 0.617) and cultural stigma (r = 0.489), and negatively with epilepsy knowledge (r = -0.326). No significant differences in stigma were found across demographic groups. The ABLE-J is a reliable, valid tool for measuring public stigma toward epilepsy in Japan. It is suitable for public health research, stigma-reduction interventions, and international comparison.
本研究旨在开发并验证癫痫生活态度与信念量表的日语版（ABLE-J），这是一种用于评估日本公众对癫痫污名化态度的多维工具。对400名日本成年人进行了一项横断面在线调查。ABLE量表被翻译成日语并进行了文化调适。验证性因子分析（CFA）检验了一个四因子模型：负面刻板印象、风险与安全担忧、工作与角色期望以及个人恐惧与社交回避。使用克朗巴哈系数评估内部一致性。通过与癫痫公众态度量表（PATE-J）、癫痫知识和文化污名的相关性来检验效度。CFA显示原始的29项模型拟合度一般（比较拟合指数：CFI = 0.867，塔克-刘易斯指数：TLI = 0.853，近似均方根误差：RMSEA = 0.091），而修订后的27项模型拟合度有所改善（CFI = 0.893，TLI = 0.880，RMSEA = 0.087）。所有子量表均显示出较高的内部一致性（29项版本的克朗巴哈系数 = 0.81 - 0.92；27项版本高达0.94）。ABLE-J得分与PATE-J呈正相关（r = 0.617），与文化污名呈正相关（r = 0.489），与癫痫知识呈负相关（r = -0.326）。不同人口学群体在污名化方面未发现显著差异。ABLE-J是一种可靠、有效的工具，可用于测量日本公众对癫痫的污名化态度。它适用于公共卫生研究、减少污名化干预措施以及国际比较。
