Wang Yao, Kim Irang, Dababnah Sarah, Reyes Charina, John Aesha
University of Maryland School of Social Work, Baltimore, MD, USA.
Tulane University School of Social Work, New Orleans, LA, USA.
Int J Dev Disabil. 2023 Dec 21;71(5):788-792. doi: 10.1080/20473869.2023.2286404. eCollection 2025.
The prevalence of developmental disabilities (DDs) has increased in the past decades. As Asian Americans (AA) represent one of the fastest-growing racial groups in the U.S., it is likely that there are a large number of AA children with DD. Racial disparities among individuals with DDs have been well-documented, yet few studies have comprehensively examined AA parents' experiences accessing diagnostic, therapeutic, or support services for their children with DD. This research gap exists, in part, due to the practical and methodological challenges in conducting culturally responsive research with AA families. In this 'Points of View' article, we describe our process of conducting a statewide, community-engaged needs assessment of AA parents of children with DD. We hope the lessons learned from this process will inform and promote future research engaging AA communities, and ultimately, help grow the body of evidence on underrepresented families of children with DD.
在过去几十年中，发育障碍（DDs）的患病率有所上升。由于亚裔美国人（AA）是美国增长最快的种族群体之一，很可能有大量患有发育障碍的亚裔美国儿童。发育障碍患者之间的种族差异已有充分记录，但很少有研究全面考察亚裔美国父母为其患有发育障碍的孩子获取诊断、治疗或支持服务的经历。这一研究空白的存在，部分原因是对亚裔美国家庭进行具有文化敏感性的研究存在实际和方法上的挑战。在这篇“观点”文章中，我们描述了对患有发育障碍儿童的亚裔美国父母进行全州范围、社区参与的需求评估的过程。我们希望从这个过程中学到的经验教训能为未来涉及亚裔美国社区的研究提供参考并加以推动，最终有助于增加关于发育障碍儿童中代表性不足家庭的证据。
