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自闭症谱系障碍中的补充与替代医学:来自一个欧洲中等收入国家父母的经历

Complementary and Alternative Medicine in Autism Spectrum Disorder: parents' experience from a middle-income European country.

作者信息

Stojanovska Irena, Trajkovski Vladimir

机构信息

Institute for Special Education and Rehabilitation, Faculty of Philosophy, University "Ss. Cyril and Methodius", Skopje, Macedonia.

出版信息

Int J Dev Disabil. 2023 Dec 16;71(5):756-766. doi: 10.1080/20473869.2023.2283646. eCollection 2025.

Abstract

INTRODUCTION

This study quantitatively evaluated the use and perceived efficacy of Complementary and Alternative Medicine (CAM) treatments among individuals with Autism Spectrum Disorder (ASD) in Macedonia, a middle-income country in Southeast Europe.

METHODS

A web-based survey was conducted among 103 parents of 103 individuals with ASD, and descriptive statistics and non-parametric tests were used to analyze the data.

RESULTS

For the purpose of this study, special diets and the other CAM treatments were analyzed separately. CAMs were used by 76% of the participants with ASD, while 29% were on a special diet. Over 90% of parents positively rated the efficacy of CAM and special diets. Higher parental education was associated with higher CAM use ( = 0.042). The age of the individual with ASD ( = 0.009), severity of ASD ( = 0.037), and co-occurring neurodevelopmental/neuropsychiatric disorders ( = 0.029) also influenced the use of CAMs and/or special diets. Around half of parents were not/were partially informed by their providers about the treatments they recommended.

CONCLUSION

This study showed a high prevalence of use of CAM (somewhat lower of special diets) coupled with insufficient familiarity with the attributes of these treatments. Found to affect the use of CAM and/or special diets were the level of parental education, the age of the affected individual, severity of ASD, and the presence of co-occurring neurodevelopmental/neuropsychiatric disorders.

摘要

引言

本研究定量评估了在东南欧中等收入国家马其顿,自闭症谱系障碍(ASD)患者中补充和替代医学(CAM)疗法的使用情况及感知疗效。

方法

对103名ASD患者的103名家长进行了一项基于网络的调查,并使用描述性统计和非参数检验分析数据。

结果

为了本研究的目的,对特殊饮食和其他CAM疗法分别进行了分析。76%的ASD参与者使用了CAM,而29%采用特殊饮食。超过90%的家长对CAM和特殊饮食的疗效给予了积极评价。较高的父母教育程度与较高的CAM使用率相关(=0.042)。ASD患者的年龄(=0.009)、ASD严重程度(=0.037)以及同时存在的神经发育/神经精神障碍(=0.029)也影响了CAM和/或特殊饮食的使用。约一半的家长未从其医疗服务提供者处/仅部分了解到他们所推荐治疗方法的相关信息。

结论

本研究表明CAM的使用率很高(特殊饮食的使用率略低),同时对这些疗法的特性了解不足。研究发现,父母教育程度、受影响个体的年龄、ASD严重程度以及同时存在的神经发育/神经精神障碍会影响CAM和/或特殊饮食的使用。

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