Şahin Merve, Salik Hava, Berk Savaş, Durmuş Mustafa
Bergama Necla-Mithat Öztüre State Hospital, İzmir, Türkiye.
Faculty of Economics and Administrative Sciences, Department of Health Management, Hakkari University, Hakkari, Türkiye.
J Pediatr Nurs. 2025 Jul 26;85:128-134. doi: 10.1016/j.pedn.2025.07.021.
This study aimed to conduct an in-depth examination of the psychological effects experienced by parents of children with special needs, as well as their encounters with stigmatization in Türkiye.
Raising children with special needs presents considerable psychological and social challenges for parents. Notably, experiences of stigmatization can adversely affect parents' mental health, leading to exclusion and social isolation. There is a paucity of scientific research on the stigmatizing experiences of parents of children with special needs in Türkiye. This study sought to elucidate the effects of stigmatization on mental health by conducting an in-depth examination of parental experiences.
This study employed interpretative phenomenological analysis, a qualitative research method. The study was conducted with 26 parents residing in eastern Türkiye from January 6 to February 28, 2025. The interviews were conducted online, using a semi-structured interview form. Thematic content analysis was performed and the data obtained were evaluated using the MAXQDA 22 program.
Data collected from the interviews were systematically analyzed across six thematic categories: meeting the obstacle, impact on the parenting roles, reactions to the obstacle, experiences of stigmatization, coping strategies, and proposed solutions.
This study elucidates significant findings regarding the stigmatization experiences encountered by parents of children with special needs as well as their coping strategies. The results indicated that parents frequently experienced feelings of burnout, loneliness, inadequacy, and exclusion as a consequence of stigmatization. However, they endeavored to overcome these challenges through social support and individual coping mechanisms. The findings advocate for the reduction of stigmatization and enhancement of parents' access to psychosocial support systems.
Mental health nurses and other healthcare professionals must comprehend the stigmatization experiences encountered by parents of children with special needs, and demonstrate sensitivity to their psychosocial support requirements. Educational programs and awareness campaigns aimed at reducing stigma should be integrated into the health care system. Furthermore, the establishment of psychological counseling and support groups for families of children with special needs is essential to prevent parental isolation. Health policies should be structured to promote comprehensive and accessible services for children with special needs and for their families.
本研究旨在深入考察特殊需求儿童家长所经历的心理影响,以及他们在土耳其遭遇污名化的情况。
抚养特殊需求儿童给家长带来了相当大的心理和社会挑战。值得注意的是,污名化经历会对家长的心理健康产生不利影响,导致被排斥和社会孤立。在土耳其,针对特殊需求儿童家长的污名化经历的科学研究匮乏。本研究试图通过深入考察家长的经历来阐明污名化对心理健康的影响。
本研究采用解释性现象学分析这一定性研究方法。研究于2025年1月6日至2月28日对居住在土耳其东部的26位家长进行。访谈通过在线方式进行,使用半结构化访谈表格。进行了主题内容分析,并使用MAXQDA 22程序对获得的数据进行评估。
从访谈中收集的数据在六个主题类别中进行了系统分析:遇到的障碍、对养育角色的影响、对障碍的反应、污名化经历、应对策略和提出的解决方案。
本研究阐明了特殊需求儿童家长所遭遇的污名化经历及其应对策略的重要发现。结果表明,由于污名化,家长经常感到倦怠、孤独、不足和被排斥。然而,他们努力通过社会支持和个人应对机制来克服这些挑战。研究结果主张减少污名化,并增加家长获得心理社会支持系统的机会。
心理健康护士和其他医疗保健专业人员必须理解特殊需求儿童家长所遭遇的污名化经历,并对他们的心理社会支持需求保持敏感。旨在减少污名化的教育项目和提高认识运动应纳入医疗保健系统。此外,为特殊需求儿童家庭建立心理咨询和支持小组对于防止家长孤立至关重要。健康政策应构建为促进为特殊需求儿童及其家庭提供全面且可及的服务。