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应对癌症的年轻成年夫妻以沟通和支持为重点的经历与需求:一项定性研究。

Communication and Support-Focused Experiences and Needs of Young Adult Couples Coping With Cancer: A Qualitative Study.

作者信息

Darabos Katie, Manne Sharon L, Devine Katie A, McHugh Sean, Desbiens Shannon

机构信息

Rutgers School of Public Health, Piscataway, New Jersey, USA.

Rutgers Cancer Institute, New Brunswick, New Jersey, USA.

出版信息

Psychooncology. 2025 Aug;34(8):e70248. doi: 10.1002/pon.70248.

DOI:10.1002/pon.70248
PMID:40738756
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12310421/
Abstract

BACKGROUND

Cancer among young adult (YA) couples is a profoundly distressing experience, extracting a significant toll on YA couples' relationships (e.g., with partners, family, friends). It is well recognized that effective communication within social relationships is critical for fostering well-being among couples coping with cancer. Despite this, limited research exists focused on communication and support needs among YA couples.

AIMS

Through qualitative semi-structured interviews, we explored the unique needs and experiences of YA couples with a focus on communication and support within their relationship and with their social support networks.

METHODS

Fifteen semi-structured interviews were conducted with YA couples. YA survivors were eligible if they were diagnosed with cancer as a young adult (aged 18-39) within the past 5 years. Relevant themes in literature guided the development and use of semi-structured interview guides.

RESULTS

Content-structuring qualitative analysis was used to identify themes. Across 15 YA couples, four main themes emerged: dyadic communication, dyadic relationship changes, social support network challenges and opportunities, and resource needs.

CONCLUSIONS

Results highlight YA couples' communication and support needs that are central, and external, to the couple. These findings elucidate how YA couples navigate the cancer experience together, highlighting experiences, needs, and concerns that are central to the developmentally off-time nature of cancer during their relationship. Additionally, results have implications for intervention development focused on communication and support among this vulnerable and underrepresented YA couple population.

摘要

背景

年轻成年(YA)夫妻患癌是一种极其痛苦的经历,会对YA夫妻的关系(如与伴侣、家人、朋友的关系)造成重大影响。人们普遍认识到,社会关系中的有效沟通对于帮助患癌夫妻提升幸福感至关重要。尽管如此,针对YA夫妻沟通和支持需求的研究却很有限。

目的

通过定性半结构化访谈,我们探讨了YA夫妻的独特需求和经历,重点关注他们关系内部以及社会支持网络中的沟通与支持。

方法

对YA夫妻进行了15次半结构化访谈。如果YA幸存者在过去5年内被诊断为年轻成年(18 - 39岁)患癌,则符合入选条件。文献中的相关主题指导了半结构化访谈指南的制定和使用。

结果

采用内容结构化定性分析来确定主题。在15对YA夫妻中,出现了四个主要主题:二元沟通、二元关系变化、社会支持网络的挑战与机遇以及资源需求。

结论

研究结果突出了YA夫妻关系核心及外部的沟通和支持需求。这些发现阐明了YA夫妻如何共同应对患癌经历,凸显了在他们关系中癌症这一与发展阶段不符的情况所带来的核心经历、需求和担忧。此外,研究结果对针对这一脆弱且代表性不足的YA夫妻群体的沟通和支持干预措施的制定具有启示意义。

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本文引用的文献

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Couple-Based Communication Interventions for Cancer Patient-Spousal Caregiver Dyads' Psychosocial Adaptation to Cancer: A Systematic Review.针对癌症患者-配偶照顾者二元组心理社会适应癌症的基于夫妻的沟通干预:一项系统综述。
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Beyond "being open about it": A systematic review on cancer related communication within couples.超越“坦诚相待”:夫妻之间癌症相关沟通的系统评价
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Active Engagement, Protective Buffering, and Depressive Symptoms in Young-Midlife Couples Surviving Cancer: The Roles of Age and Sex.中年癌症幸存者夫妇中的积极参与、保护性缓冲与抑郁症状:年龄和性别的作用
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Sample sizes for saturation in qualitative research: A systematic review of empirical tests.定性研究中饱和度的样本量:实证检验的系统综述。
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Open Communication and Physical Intimacy in Young and Midlife Couples Surviving Cancer Beyond the First Year of Diagnosis.癌症诊断后第一年过后,中青年癌症存活患者的开放沟通和身体亲密关系。
Oncol Nurs Forum. 2021 Nov 1;48(6):669-679. doi: 10.1188/21.ONF.669-679.
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Challenges experienced and resources identified by young to midlife couples 1-3 years post-cancer diagnosis.癌症诊断后 1-3 年的中青年夫妇所经历的挑战和识别出的资源。
Psychooncology. 2022 Jan;31(1):116-121. doi: 10.1002/pon.5788. Epub 2021 Aug 25.
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Young Adult Cancer Survivorship: Recommendations for Patient Follow-up, Exercise Therapy, and Research.青少年癌症幸存者:患者随访、运动疗法和研究建议。
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Relationship communication and the course of psychological outcomes among couples coping with localised prostate cancer.夫妻应对局限性前列腺癌过程中的关系沟通与心理结果的关系。
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