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与临终者同行——姑息治疗医生的经验教训

Journeying with the Dying-Lessons from Palliative Care Physicians.

作者信息

Radha Krishna Lalit Kumar, Binte Abdul Hamid Nur Amira, Lim Nicole-Ann, Ho Chong Yao, Ibrahim Halah

机构信息

Yong Loo Lin School of Medicine, National University of Singapore, Singapore.

Division of Cancer Education, National Cancer Centre Singapore, Singapore.

出版信息

Asian Bioeth Rev. 2024 Dec 14;17(3):591-613. doi: 10.1007/s41649-024-00321-5. eCollection 2025 Jul.

Abstract

UNLABELLED

Witnessing suffering and death in palliative care can cause moral distress, emotional exhaustion and maladaptive coping strategies. How sense and meaning is made from these experiences influences how physicians think, feel and act as professionals (professional identity formation or PIF). It also determines how they cope with their roles, care for patients and interact with other professionals. Timely, personalised and appropriate support is key as shaping how these physicians develop and contend with sometimes competing beliefs and roles. The Ring Theory of Personhood (RToP) and the Krishna-Pisupati Model (KPM) offer a means of mapping PIF and thus moulding, coping and meaning making. This study uses the RToP and KPM to explore how caring for end-of-life patients impacts the personhood of palliative care physicians. Semi-structured interviews with a purposive sample of 13 palliative care physicians-eleven females and two males aged between 35 and 50 years-at a cancer specialist centre were conducted. Transcripts of the audio-recorded interviews underwent content and thematic analysis where complementary themes and categories identified were combined to form domains that highlighted the physicians' key experience of providing end-of-life care. The domains identified were (1) identity formation, (2) conflicts, (3) KPM elements and (4) support systems. Together, results revealed that palliative care physicians are driven by Innate, Individual, Relational and Societal belief systems that create an intertwined professional and personal identity, enabling them to find meaning in their experiences and adapt to present contexts within cultural norms and professional expectations. However, their failure to recognise their need for support when hampered by evolving personal, existential and clinical factors underlines the exigency for ongoing surveillance and a potential role for a RToP-based tool and portfolio system that can detect and direct timely, appropriate support to in-need physicians.

SUPPLEMENTARY INFORMATION

The online version contains supplementary material available at 10.1007/s41649-024-00321-5.

摘要

未标注

在姑息治疗中目睹痛苦和死亡可能会导致道德困扰、情感耗竭和适应不良的应对策略。如何从这些经历中获得意义和理解,会影响医生作为专业人员的思维、感受和行为方式(专业身份形成或PIF)。这也决定了他们如何应对自己的角色、照顾患者以及与其他专业人员互动。及时、个性化且适当的支持是塑造这些医生如何发展并应对有时相互冲突的信念和角色的关键。人格环理论(RToP)和克里希纳 - 皮苏帕蒂模型(KPM)提供了一种描绘PIF的方法,从而塑造、应对和赋予意义。本研究使用RToP和KPM来探索照顾临终患者如何影响姑息治疗医生的人格。对一家癌症专科中心的13名姑息治疗医生(11名女性和2名男性,年龄在35至50岁之间)进行了有目的抽样的半结构化访谈。对录音访谈的文字记录进行了内容和主题分析,将所确定的互补主题和类别合并形成领域,突出了医生提供临终护理的关键经历。所确定的领域包括:(1)身份形成,(2)冲突,(3)KPM要素,(4)支持系统。结果共同表明,姑息治疗医生受到内在、个体、关系和社会信仰系统的驱动,这些系统创造了一个相互交织的专业和个人身份,使他们能够在经历中找到意义,并在文化规范和专业期望内适应当前环境。然而,当受到不断演变的个人、存在和临床因素阻碍时,他们未能认识到自己对支持的需求凸显了持续监测的紧迫性,以及基于RToP的工具和档案系统可能发挥的作用,该系统可以检测并及时为有需要的医生提供适当的支持。

补充信息

在线版本包含可在10.1007/s41649 - 024 - 00321 - 5获取的补充材料。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4a99/12304369/781d7543952f/41649_2024_321_Fig1_HTML.jpg

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