Llubes-Arrià Laia, Briones-Vozmediano Erica, Mateos José Tomás, Sol-Cullere Joaquim, Gea-Sánchez Montserrat, Rubinat-Arnaldo Esther
Institut Català de la Salut, Primary Care, Lleida Research Support Unit (USR), Fundació Institut Universitari per a la Recerca en Atenció Primària de Salut Jordi Gol i Gurina (IDIAP JGol), Lleida, Spain.
Health Care Research Group (GRECS), Lleida Biomedical Research Institute (IRBLleida), Lleida, Spain.
Arch Public Health. 2025 Jul 31;83(1):200. doi: 10.1186/s13690-025-01686-1.
Multimorbidity significantly affects patients' quality of life and poses a growing challenge for healthcare systems worldwide, particularly in ageing populations. Effective self-management is key to improving health outcomes, yet gender plays a crucial role in shaping patients' experiences and approaches to managing chronic conditions. This study aimed to explore gender differences in self-management among individuals living with multiple chronic diseases.
We conducted a qualitative phenomenological study using in-depth semi-structured interviews with 43 patients, purposively sampled to capture variation in age, socioeconomic background, and healthcare setting. Interviews explored experiences of self-management among both women and men, and data were analysed thematically to identify patterns across narratives. Thematic analysis was applied to the qualitative data, and findings were interpreted in alignment with the domains of the Patient Activation Measure-13 (PAM-13).
Six main themes emerged: personal responsibility, health literacy, self-management and decision-making, communication with healthcare professionals, adherence and treatment monitoring, prevention of complications, and lifestyle modifications. Importantly, gender differences significantly shaped patients' engagement with self-management across all thematic areas. Women generally demonstrated a more proactive approach, while men were more likely to depend on external support.
This study highlights distinct gendered approaches to chronic illness management. Women tended to actively engage in self-care and frequently took on informal caregiving responsibilities, pointing to the need for interventions that support shared decision-making and alleviate caregiver burden. In contrast, men were generally more reliant on others and less inclined to seek help, emphasizing the importance of fostering autonomy, enhancing health literacy, and encouraging early engagement with healthcare services. These findings underscore the value of gender-sensitive, patient-centred approaches in chronic disease management to improve health outcomes and reduce disparities.
多病共存严重影响患者的生活质量,给全球医疗系统带来日益严峻的挑战,尤其是在老龄化人口中。有效的自我管理是改善健康结局的关键,然而性别在塑造患者应对慢性病的经历和方式方面起着至关重要的作用。本研究旨在探讨患有多种慢性病的个体在自我管理方面的性别差异。
我们进行了一项定性现象学研究,对43名患者进行了深入的半结构化访谈,采用目的抽样以涵盖年龄、社会经济背景和医疗环境的差异。访谈探讨了男性和女性的自我管理经历,并对数据进行了主题分析以识别不同叙述中的模式。对定性数据应用了主题分析,并根据患者激活量表13(PAM - 13)的领域对研究结果进行了解释。
出现了六个主要主题:个人责任、健康素养、自我管理与决策、与医疗专业人员的沟通、依从性与治疗监测、并发症预防以及生活方式改变。重要的是,性别差异在所有主题领域中显著影响了患者参与自我管理的方式。女性通常表现出更积极主动的方式,而男性则更倾向于依赖外部支持。
本研究突出了慢性病管理中不同的性别化方式。女性倾向于积极参与自我护理并经常承担非正式护理责任,这表明需要采取干预措施来支持共同决策并减轻护理负担。相比之下,男性通常更依赖他人且不太愿意寻求帮助,这强调了培养自主性、提高健康素养以及鼓励早期参与医疗服务的重要性。这些发现强调了在慢性病管理中采用性别敏感、以患者为中心的方法对于改善健康结局和减少差异的价值。