Radovanovic Dejan, Milani Lisa, Mandurino Mirizzi Francesca, Forlano Antonella, Ghezzi Michele, Morelli Marco, Garancini Nicolò, Dubini Andrea, Munari Alice, Zirpoli Salvatore, Farolfi Andrea, Santus Pierachille
1 Division of Respiratory Diseases, L. Sacco University Hospital, ASST Fatebenefratelli-Sacco, Milano, Italy. 2 Department of Biomedical and Clinical Sciences, Università Degli Studi di Milano, Milano, Italy. 3 Coordinated Research Center on Respiratory Failure, University of Milan, Milano, Italy.
1 Division of Respiratory Diseases, L. Sacco University Hospital, ASST Fatebenefratelli-Sacco, Milano, Italy. 2 Department of Biomedical and Clinical Sciences, Università Degli Studi di Milano, Milano, Italy.
Multidiscip Respir Med. 2025 Aug 1;20(1):1038. doi: 10.5826/mrm.2025.1038.
Paediatric-to-adult transition represents an unmet need in many chronic conditions. Data and -outcomes on pulmonary transition clinics (PTC) are limited. Methods: We report the structure, organization, and patients' characteristics of a multidisciplinary outpatient PTC started in 2022 by two secondary level academic hospitals in Milan, Italy. Consecutive adult patients (≥18 years old) that entered the PTC from January 2022 until January 2023 and completed ≥2 follow-up visits were asked to answer a custom designed, anonymized, online questionnaire to test improvement in disease perception, self-confidence, and evaluate their experience with the clinic. Results: Out of thirty-three patients, twenty-one completed the survey (62% males, median age 19 years). The most common diagnoses included asthma (57%) and bronchiectasis (19%). The disease control rate was optimal, only <2% of visits were unscheduled emergency visits. 100% of patients rated the presence of a dedicated service, a direct relationship with the treating physician and the possibility to improve self-management extremely useful.
Our questionnaire revealed that transitioning from caregiver-based disease management to patient-based disease management was perceived as more arduous. PTCs are an impactful resource for patients transitioning to adult care, but our knowledge on disease specific management strategies in transitioning patients remains limited.
从儿科到成人的过渡在许多慢性病中是一项未得到满足的需求。关于肺部过渡诊所（PTC）的数据和结果有限。
我们报告了意大利米兰的两家二级学术医院于2022年开设的多学科门诊PTC的结构、组织和患者特征。要求从2022年1月至2023年1月进入PTC并完成≥2次随访的成年患者（≥18岁）回答一份定制的、匿名的在线问卷，以测试疾病认知、自信心的改善情况，并评估他们在诊所的体验。
在33名患者中，21名完成了调查（62%为男性，中位年龄19岁）。最常见的诊断包括哮喘（57%）和支气管扩张（19%）。疾病控制率最佳，只有不到2%的就诊是未经安排的急诊就诊。100%的患者认为有专门的服务、与主治医生的直接关系以及改善自我管理的可能性非常有用。
我们的问卷显示，从以照顾者为基础的疾病管理过渡到以患者为基础的疾病管理被认为更加艰巨。PTC是患者向成人护理过渡的一项有影响力的资源，但我们对过渡患者疾病特异性管理策略的了解仍然有限。
