Bay Annika, Vidarsdottir Harpa, Jangsten Elisabeth, Burström Åsa
Department of Nursing, Umea University, 90736, Umea, Sweden.
Department of Pediatric Cardiology, Astrid Lindgren Children's Hospital, Karolinska University Hospital, Stockholm, Sweden.
Eur J Pediatr. 2025 Aug 1;184(8):520. doi: 10.1007/s00431-025-06357-5.
More adolescents with congenital heart disease (CHD) are reaching adulthood and reproductive age. They face challenges transitioning from pediatric to adult health care and need to manage their health and developmental goals. The 2030 Agenda emphasizes a holistic approach to sexual and reproductive health rights (SRHR), aiming to provide accessible information to adolescents. Healthcare providers (HCPs) must offer appropriate information about CHD and SRHR issues. This study aimed to describe HCPs' experiences of informing adolescents with heart disease about SRH. An explorative study with a descriptive design using semi-structured interviews. The qualitative content analysis method by Graneheim and Lundman was used to analyze the data. The interviews provided a wealth of data, revealing different opinions and experiences. The analysis resulted in four main categories: (1) organizational culture, (2) health care professionals' perception of adolescents' needs, (3) skills and ability are essential, and (4) parents' influence on conversationConclusion: Discussing SRH is universally accepted among HCPs, but prioritization varies. HCPs must customize information, consider the timing and setting of the conversation. Enhanced knowledge and skills in SRH are essential, including strategies to overcome barriers and respectfully involve parents. Crucially, adolescents' rights to SRH information must always be upheld. What is Known: • There are challenges in the transition from pediatric to adult care in managing adolescents' health and developmental goals. Health professionals need to provide appropriate information to adolescents about their sexual and reproductive health. What is New: • This information needs to be tailored to the time and setting of the counselling session. Health professionals need to know more about how to provide this information and are looking for more knowledge on the subject.
越来越多患有先天性心脏病（CHD）的青少年正步入成年期和生育年龄。他们在从儿科医疗过渡到成人医疗保健方面面临挑战，需要兼顾自身健康和发育目标。《2030年议程》强调对性与生殖健康权利（SRHR）采取整体方法，旨在为青少年提供可获取的信息。医疗保健提供者（HCPs）必须提供有关先天性心脏病和性与生殖健康权利问题的适当信息。本研究旨在描述医疗保健提供者向患有心脏病的青少年告知性与生殖健康（SRH）方面的经历。一项采用半结构化访谈的描述性设计的探索性研究。运用Graneheim和Lundman的定性内容分析法对数据进行分析。访谈提供了丰富的数据，揭示了不同的观点和经历。分析得出四个主要类别：（1）组织文化；（2）医疗保健专业人员对青少年需求的认知；（3）技能和能力至关重要；（4）父母对谈话的影响。结论：医疗保健提供者普遍认可讨论性与生殖健康，但优先级各不相同。医疗保健提供者必须量身定制信息，考虑谈话的时机和场合。增强性与生殖健康方面的知识和技能至关重要，包括克服障碍并尊重地让父母参与的策略。至关重要的是，必须始终维护青少年获取性与生殖健康信息的权利。已知信息：• 在管理青少年的健康和发育目标方面，从儿科医疗向成人医疗过渡存在挑战。卫生专业人员需要向青少年提供有关其性与生殖健康的适当信息。新发现：• 此信息需要根据咨询环节的时间和场合进行调整。卫生专业人员需要更多了解如何提供此类信息，并正在寻求该主题的更多知识。
