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在校重新融入期间:对小儿肾移植术后父母心理体验的质性研究

During school reintegration: a qualitative study of parental psychological experiences following paediatric kidney transplantation.

作者信息

Maomao L V, Bai Shuo, Huang Jing, Qi Jiwei, Shi Zhuo, Jia Lili

机构信息

pediatrics, Nanjing Jinling Hospital, Nanjing, Jiangsu, China.

pediatrics, Nanjing Jinling Hospital, Nanjing, Jiangsu, China

出版信息

BMJ Paediatr Open. 2025 Aug 3;9(1):e003429. doi: 10.1136/bmjpo-2025-003429.

DOI:10.1136/bmjpo-2025-003429
PMID:40754345
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12320034/
Abstract

OBJECTIVE

To understand the psychological experience of parents of children who have undergone kidney transplantation during school reintegration and to provide a basis for developing targeted interventions.

METHOD

Using purposive sampling, parents of 11 children admitted to the paediatric department of a tertiary-level hospital in Jiangsu Province following kidney transplantation from June 2022 to June 2024 were selected as study participants. One-to-one, semistructured in-depth interviews were conducted, and Colaizzi's seven-step analysis was applied to analyse the interview data.

RESULTS

Four themes emerged: the dilemma between parental expectations and school acceptance, complexity and ambivalence before returning to school, optimism and gratitude after returning to school and expectation of social support.

CONCLUSION

Parents of kidney-transplanted children face various dilemmas regarding school reintegration. Clinical caregivers should pay attention to their psychological experience of parents, develop personalised intervention systems and enhance the caregivers' coping ability in order to improve the children's quality of life.

摘要

目的

了解肾移植患儿家长在孩子复学过程中的心理体验,为制定针对性干预措施提供依据。

方法

采用目的抽样法,选取2022年6月至2024年6月在江苏省某三级甲等医院儿科接受肾移植术后的11名患儿的家长作为研究对象。进行一对一、半结构式深度访谈,并运用Colaizzi七步法对访谈资料进行分析。

结果

提炼出四个主题:家长期望与学校接纳的两难境地、复学前期的复杂矛盾情绪、复学后的乐观感恩心态以及对社会支持的期待。

结论

肾移植患儿家长在孩子复学方面面临诸多两难境地。临床护理人员应关注家长的心理体验,制定个性化干预方案,增强家长的应对能力,以提高患儿的生活质量。

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本文引用的文献

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Maintaining Schooling for Children With Cancer During and Post Treatment: Parents' Perspectives of a Theory-Based Program.癌症患儿治疗期间及治疗后的学业维持:家长对基于理论的项目的看法。
Contin Educ. 2021 Mar 15;2(1):26-41. doi: 10.5334/cie.24. eCollection 2021.
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Long-term social outcome after pediatric kidney transplantation: a single-center experience.小儿肾移植后的长期社会结局:单中心经验
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Obesogenic Behaviors of Rural Children on School and Nonschool Days.
农村儿童在上学日和非上学日的致肥胖行为。
Child Obes. 2021 Oct;17(7):483-492. doi: 10.1089/chi.2021.0084. Epub 2021 Jun 15.
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Quality of life in children with kidney transplant: Systematic review.
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Trying to Feel Normal Again: Early Survivorship for Adolescent Cancer Survivors.再次尝试感受正常:青少年癌症幸存者的早期生存。
Cancer Nurs. 2019 Jul/Aug;42(4):E11-E21. doi: 10.1097/NCC.0000000000000629.
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