Ansari Shamsuzzaman, Patel Geetika, Malaviya Anushka, Dehankar Vaishnavee, Bs Rajeswari
Pharmaceutical Management, Institute of Health Management Research, Bangalore, IND.
Hospital Management, Institute of Health Management Research, Bangalore, IND.
Cureus. 2025 Jul 5;17(7):e87329. doi: 10.7759/cureus.87329. eCollection 2025 Jul.
The growing burden of cancer poses a significant public health challenge, with late-stage diagnoses leading to severe health complications. As a life-altering disease, cancer not only impacts individuals but also affects their families, communities, and the nation as a whole. Effective patient engagement is crucial for improving health outcomes, and while India has made considerable progress in this area, several challenges persist. This narrative review aims to explore patient engagement and care strategies implemented by oncology healthcare providers across India. In order to do this, a comprehensive search was conducted across PubMed, ScienceDirect, and Google, using keywords such as patient engagement, patient engagement in oncology, patient engagement by cancer care hospitals, community engagement, community outreach, and patient-centered care by oncology service providers. Websites of key oncology service providers were also explored to identify the patient engagement and care strategies implemented by these service providers. The review specifically examines research from India to ensure relevance to the country's healthcare landscape. These strategies include patient education and empowerment, technology-driven innovations, community-based initiatives, patient-centered communication, health gamification and incentive programs, and caregiver and family involvement. Findings indicate that enhancing community participation, expanding financial support programs, integrating artificial intelligence (AI)-powered digital health solutions, and increasing telemedicine accessibility can significantly improve patient involvement and health outcomes. The review found numerous barriers that hinder widespread adoption, including disparities in healthcare access, low health literacy, lack of awareness and motivation, technological challenges, increasing out-of-pocket expenses, an insufficient medical workforce, and limited cancer research. Systematically addressing these challenges is essential for establishing an inclusive, accessible, and patient-centered oncology care system in India.
癌症负担的不断加重对公共卫生构成了重大挑战,晚期诊断会导致严重的健康并发症。作为一种改变生活的疾病,癌症不仅影响个人,还会对其家庭、社区乃至整个国家产生影响。有效的患者参与对于改善健康结果至关重要,尽管印度在这一领域已经取得了相当大的进展,但仍存在一些挑战。本叙述性综述旨在探讨印度肿瘤医疗服务提供者实施的患者参与和护理策略。为此,在PubMed、ScienceDirect和谷歌上进行了全面搜索,使用了患者参与、肿瘤学中的患者参与、癌症护理医院的患者参与、社区参与、社区外展以及肿瘤服务提供者以患者为中心的护理等关键词。还对主要肿瘤服务提供者的网站进行了探索,以确定这些服务提供者实施的患者参与和护理策略。该综述特别考察了来自印度的研究,以确保与该国的医疗格局相关。这些策略包括患者教育与赋权、技术驱动的创新、基于社区的举措、以患者为中心的沟通、健康游戏化和激励计划,以及照顾者和家庭的参与。研究结果表明,加强社区参与、扩大财政支持计划、整合人工智能驱动的数字健康解决方案以及提高远程医疗的可及性,可以显著改善患者的参与度和健康结果。该综述发现了许多阻碍广泛采用的障碍,包括医疗服务可及性的差异、健康素养低、缺乏意识和动力、技术挑战、自付费用增加、医疗劳动力不足以及癌症研究有限。系统地应对这些挑战对于在印度建立一个包容、可及且以患者为中心的肿瘤护理系统至关重要。