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从同伴支持者角度看慢性病中的同伴支持:一项系统综述

Peer Support in Chronic Conditions from the Peer Supporters' Perspective: A Systematic Review.

作者信息

Braun Annika, Löwe Bernd, Uhlenbusch Natalie

机构信息

University Medical Centre Hamburg-Eppendorf Hamburg Germany University Medical Centre Hamburg-Eppendorf, Germany.

出版信息

Psychosoc Interv. 2025 Jul 29;34(3):175-188. doi: 10.5093/pi2025a14. eCollection 2025 Sep.

Abstract

Peer support can be a valuable addition to routine care for patients with chronic conditions. While the benefits of peer support are well documented, most research has focused on the recipients' perspective. Given the central role of peer supporters, their experiences should be considered equally important. This systematic review synthesizes the existing literature on the experiences of peer supporters with chronic conditions. We conducted a systematic search across PubMed, PsycInfo (OVID), Psyndex (OVID), Web of Science and screened grey literature, citation and reference lists. Quantitative and qualitative studies reporting on the experiences of peer supporters with a somatic chronic condition were included. The qualitative synthesis followed a metaethnographic approach. Quantitative findings were summarized descriptively and risk of bias of all studies assessed. Out of 9,144 papers identified, 72 were included, mostly qualitative and varying in quality. The synthesis revealed diverse experiences grouped into three categories. Benefits included meaningfulness of the role, skill development, personal growth, social inclusion, reciprocal support, employment advantages, and better disease management. Challenges involved organisational demands, emotional strain, difficult peer interactions, and unclear roles. Facilitators and suggested improvements concerned support, role clarity, setting, and counselling. Overall, the evidence indicates a slightly positive experience for peer supporters. Being a peer supporter is a multifaceted experience that offers various benefits while also presenting challenges. Incorporating peer supporters' perspectives is essential to ensuring that peer-based programs benefit all parties involved, thereby maximizing overall impact. Practical implications for design and execution of future peer-based interventions are provided.

摘要

同伴支持对于慢性病患者的常规护理而言可能是一项宝贵的补充。虽然同伴支持的益处已有充分记录,但大多数研究都集中在接受者的角度。鉴于同伴支持者的核心作用,他们的经历应被视为同样重要。本系统评价综合了关于慢性病同伴支持者经历的现有文献。我们在PubMed、PsycInfo(OVID)、Psyndex(OVID)、科学网进行了系统检索,并筛选了灰色文献、引文和参考文献列表。纳入了报告躯体慢性病同伴支持者经历的定量和定性研究。定性综合采用了元民族志方法。对定量研究结果进行了描述性总结,并评估了所有研究的偏倚风险。在识别出的9144篇论文中,纳入了72篇,大多为定性研究,质量参差不齐。综合结果揭示了分为三类的不同经历。益处包括角色的意义、技能发展、个人成长、社会包容、相互支持、就业优势和更好的疾病管理。挑战涉及组织要求、情感压力、与同伴的艰难互动以及角色不明确。促进因素和建议的改进涉及支持、角色明确、环境和咨询。总体而言,证据表明同伴支持者的经历略显积极。成为同伴支持者是一种多方面的经历,既带来各种益处,也带来挑战。纳入同伴支持者的观点对于确保基于同伴的项目使所有相关方受益、从而最大化整体影响至关重要。本文还提供了对未来基于同伴的干预措施设计和实施的实际启示。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e344/12319606/6b12a4986502/1132-0559-pi-34-3-0175-gf01.jpg

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