Padd Rae, Leadley Sarah, Miles Anna
Department of Psychology, Faculty of Science, University of Auckland, Auckland, New Zealand.
J Hum Nutr Diet. 2025 Aug;38(4):e70107. doi: 10.1111/jhn.70107.
Paediatric tube feeding is a crucial intervention for children unable to meet nutritional needs orally, yet information available to families is often insufficient. This study explores the availability and quality of online patient education materials (OPEMs) on paediatric tube feeding and discusses their applicability to Aotearoa New Zealand.
A naturalistic search strategy mimicking how parents would use Google search was employed using pre-defined search terms regarding support for paediatric tube feeding. Webpages were included if they provided educational content for caregivers. The first page of each search was screened, and webpages within relevant Aotearoa sites were also reviewed. Data on accessibility, readability, understandability, actionability, content analysis and completeness were collected and analysed.
Fifty-nine webpages were included and analysed. Readability consistently exceeded the maximum recommended eighth-grade level. Official sources targeting parents scored high in understandability and actionability. Official webpages also demonstrated the highest content coverage. The content analysis identified 34 individual topic codes. Rarely addressed topics included emotional aspects of the child and social management of tube feeding. Some content provided general advice that did not account for variations in children's medical conditions, developmental stages or family contexts.
These findings are clinically relevant, guiding professionals on the effective use of existing OPEMs. Despite high understandability and actionability scores from some sources, significant gaps remain. OPEMs have the potential to improve health equity by improving website content, centralising information and enhancing access to education that empowers family-centred care and wellbeing.
儿科管饲是对无法通过口服满足营养需求的儿童的一项关键干预措施，但家庭可获得的信息往往不足。本研究探讨了关于儿科管饲的在线患者教育材料（OPEMs）的可用性和质量，并讨论了它们在新西兰奥塔哥地区的适用性。
采用一种自然主义的搜索策略，模仿家长使用谷歌搜索的方式，使用关于支持儿科管饲的预定义搜索词。如果网页为护理人员提供教育内容，则将其纳入。对每次搜索的第一页进行筛选，并对新西兰奥塔哥地区相关网站内的网页进行审查。收集并分析了有关可及性、可读性、可理解性、可操作性、内容分析和完整性的数据。
纳入并分析了59个网页。可读性始终超过推荐的最高八年级水平。针对家长的官方来源在可理解性和可操作性方面得分较高。官方网页的内容覆盖范围也最广。内容分析确定了34个单独的主题代码。很少涉及的主题包括儿童的情感方面和管饲的社会管理。一些内容提供了一般性建议，没有考虑到儿童医疗状况、发育阶段或家庭背景的差异。
这些发现具有临床相关性，可为专业人员有效使用现有OPEMs提供指导。尽管一些来源的可理解性和可操作性得分较高，但仍存在重大差距。OPEMs有潜力通过改善网站内容、集中信息和增加获得教育的机会来促进以家庭为中心的护理和福祉，从而改善健康公平性。
