Factors Associated with Caregiver Burden in Families of Patients with Palliative and Chronic Illness: A Cross-Sectional Study.

BACKGROUND

Caregivers of patients with palliative and chronic conditions often experience complex physical, emotional, and social burdens. These burdens impact not only their well-being but also the continuity and quality of care provided.

PURPOSE

This study aimed to identify the level of caregiver burden and factors associated with it in families caring for members with palliative conditions and chronic illnesses.

PATIENTS AND METHODS

A cross-sectional study of 71 caregivers was conducted using convenience sampling. Data were collected using the FATCOD-B, knowledge toward palliative care, and Zarit Burden Interview (ZBI). Data were analyzed using the Rasch model and bivariate tests.

RESULTS

A high burden was reported by 50.7% of caregivers, while 39.4% and 9.9% experienced moderate and low burden, respectively. The variables of marital status, length of care, the availability of health insurance, and caregiver attitude showed a significant relationship to caregiver burden (<0.05). Rasch's analysis revealed that perceived loss of privacy was the statement with the lowest level of agreement. At the same time, feelings of not being optimal enough in providing care were the statement most frequently acknowledged by caregivers.

CONCLUSION

Psychosocial and structural factors influence caregiver burden. These findings highlight the need for integrated interventions, including psychosocial support, financial security, and caregiver education, to mitigate burden in this population.