Li Mengqi, Devane Declan, Beecher Claire, Dowling Maura, Duffy Austin G, Duggan Caitriona, Grimes David Robert, Kennan Avril, Kilty Claire, Nsangi Allen, Oxman Andrew D, Stewart Derek C, Toomey Elaine, Tierney Marie
School of Nursing & Midwifery, University of Galway, Galway, Ireland.
Health Research Board - Trials Methodology Research Network (HRB-TMRN), University of Galway, Galway, Ireland.
J Cancer Surviv. 2025 Aug 7. doi: 10.1007/s11764-025-01874-6.
People impacted by cancer face increasing challenges in navigating a landscape of abundant health information and misinformation. This study outlines the development and pilot testing of the Informed Health Choices-Cancer (IHC-C) learning resource, designed to provide users the skills and knowledge necessary to think critically about the reliability of health claims and make well-informed choices. This study outlines the development and pilot testing of this learning resource.
Using a human-centred design approach, the resource was co-developed with those impacted by cancer through iterative refinement. Tailored content and multimedia formats were used to support over three stages of pilot testing: initial prototype development, testing with small stakeholder groups, and testing with a broader sample. Quantitative ratings and qualitative feedback guided improvements in accessibility, usability, and relevance.
Thirty-three participants responded positively to the resource, noting its accessible language, practical content, and engaging format. In the final round of testing, over 80% found the resource as 'very well aligned' with learning outcomes, 'very easy to understand', 'very relevant' to cancer, and 'very easy to navigate'. Navigation ratings improved from 50.0% at prototype stage to 85.4% at final stage. The resource was perceived as effective in supporting critical thinking, informed decision-making, and reflecting real-life cancer experiences.
The IHC-C learning resource offers an innovative, practical tool for integrating critical thinking into cancer care. It shows promise in supporting informed decision-making and reduces vulnerability to misinformation.
The resource may enhance health literacy and empower survivors to critically evaluate health information and manage their care more confidently.
受癌症影响的人们在面对海量的健康信息和错误信息时，面临着越来越多的挑战。本研究概述了“知情健康选择 - 癌症”（IHC - C）学习资源的开发和试点测试情况，该资源旨在为用户提供必要的技能和知识，使其能够批判性地思考健康声明的可靠性并做出明智的选择。本研究概述了此学习资源的开发和试点测试情况。
采用以人为本的设计方法，通过反复完善，与受癌症影响的人群共同开发了该资源。在试点测试的三个阶段使用了量身定制的内容和多媒体形式：初始原型开发、与小利益相关者群体进行测试以及与更广泛的样本进行测试。定量评级和定性反馈指导了在可及性、可用性和相关性方面的改进。
33名参与者对该资源给予了积极回应，指出其语言通俗易懂、内容实用且形式引人入胜。在最后一轮测试中，超过80%的人认为该资源与学习成果“非常契合”、“非常易于理解”、与癌症“非常相关”且“非常易于导航”。导航评级从原型阶段的50.0%提高到了最后阶段的85.4%。该资源被认为在支持批判性思维、明智决策以及反映现实生活中的癌症经历方面是有效的。
IHC - C学习资源为将批判性思维融入癌症护理提供了一种创新且实用的工具。它在支持明智决策方面显示出了潜力，并减少了受错误信息影响的可能性。
该资源可能会提高健康素养，并使幸存者有能力批判性地评估健康信息，更自信地管理自己的护理。
