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波兰社会对儿童癌症相关挑战的看法:波兰民意调查分析

Polish Society's Perspective on the Challenges Related to Childhood Cancer: Analysis of Public Opinion Research in Poland.

作者信息

Pruban J, Maleszewska K, Antoniuk-Majchrzak J, Wujec M, Czerwińska M, Jurowczyk P, Zieliński Ł, Raciborska A

机构信息

Department of Oncology and Oncological Surgery for Children and Youth, Institute of Mother and Child, Warsaw, Poland.

ABR SESTA Sp. z o.o, Warsaw, Poland.

出版信息

Cancer Rep (Hoboken). 2025 Aug;8(8):e70297. doi: 10.1002/cnr2.70297.

DOI:10.1002/cnr2.70297
PMID:40774700
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12331377/
Abstract

BACKGROUND

Treatment of children diagnosed with cancer requires coordinated, multimodal therapy that is often resource intensive and can occur over several years. In addition to physical suffering, children diagnosed with cancer experience an emotional burden that also impacts their families and communities. To best support these children and their families, we must understand society's perspective and assess its readiness to take action to improve the situation of children affected by cancer.

AIMS

The aim of this study was to solicit the attitudes of the Polish community towards childhood cancer. Gaining an understanding of the Polish public's awareness and knowledge regarding childhood cancer will highlight areas for future exploration and education to improve childhood cancer outcomes.

METHODS AND RESULTS

This study was conducted in December 2023, as a component of a collaborative research effort (Institute of Mother and Child, SYNO and ABR SESTA). The Computer-Assisted Web Interview via website research technique was used; 1002 respondents from Poland participated, maintaining the structure of Poles according to gender, age, and size of place of residence. Pediatric cancer is an important topic that concerns everyone-young people, as parents or future parents, or older people, as grandparents who often take care of children. Therefore, everyone should have elementary knowledge on this subject. This is admitted by the respondents themselves, with 65% of the total declaring that they would like to know more about childhood cancer. This is emphasized even more by parents-72%. More than half of respondents believe that the availability and quantity of materials on this topic are insufficient, and only 34% admit that in Poland there is talk about childhood cancer. Respondents agree on increasing the coverage of the topic in the media (72%).

CONCLUSIONS

The perspective of Polish society, faced with the challenges related to childhood cancer, seems to be focused on the need to increase awareness, support families, access to high-quality health care, and promote activities aimed at improving the situation of children with cancer. The analysis of the study determines the need to expand the knowledge of Polish society about childhood cancer.

摘要

背景

对确诊患有癌症的儿童进行治疗需要协调一致的多模式疗法,这种疗法通常资源密集,且可能持续数年。除了身体上的痛苦,确诊患有癌症的儿童还承受着情感负担,这也会影响他们的家庭和社区。为了最好地支持这些儿童及其家庭,我们必须了解社会的观点,并评估其采取行动改善受癌症影响儿童状况的意愿。

目的

本研究的目的是征求波兰社区对儿童癌症的态度。了解波兰公众对儿童癌症的认识和知识,将突出未来探索和教育的领域,以改善儿童癌症的治疗结果。

方法与结果

本研究于2023年12月进行,是一项合作研究工作(母婴研究所、SYNO和ABR SESTA)的一部分。采用了通过网站研究技术进行的计算机辅助网络访谈;来自波兰的1002名受访者参与了调查,按照性别、年龄和居住地区规模保持波兰人的结构。儿童癌症是一个涉及每个人的重要话题——年轻人作为父母或未来的父母,或者老年人作为经常照顾孩子的祖父母。因此,每个人都应该对这个主题有基本的了解。受访者自己也承认这一点,65%的受访者表示他们想更多地了解儿童癌症。父母的这一比例更高,为72%。超过一半的受访者认为关于这个主题的资料的可得性和数量不足,只有34%的人承认在波兰有关于儿童癌症的讨论。受访者同意增加媒体对该主题的报道(72%)。

结论

面对与儿童癌症相关的挑战,波兰社会的观点似乎集中在提高认识、支持家庭、获得高质量医疗保健以及促进旨在改善癌症儿童状况的活动的必要性上。该研究的分析确定了扩大波兰社会对儿童癌症知识的必要性。

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