Altinok Kübra, Güney Seda, Yüceer Bugse, Razum Oliver, Roes Martina
German Centre for Neurodegenerative Diseases, Bonn, Germany
Bielefeld University, Bielefeld, Germany.
BMJ Open. 2025 Aug 16;15(8):e091289. doi: 10.1136/bmjopen-2024-091289.
The specific preferences that shape the daily lives of people with dementia serve as the basis for the concept of person-centred care. However, information on the complex experiences of culturally and linguistically diverse people with dementia (CALDPwD), which determine their multifaceted preferences, is lacking. Therefore, the objective of this scoping review is to identify the range, extent and nature of evidence available in peer-reviewed and grey literature examining how the multilayered experiences of CALDPwD influence everyday living preferences.
We aim to conduct a scoping review to explore the multilayered experiences of CALDPwD and the intersectional determinants of their everyday living preferences. Using PubMed, MEDLINE (via Ovid for precision and controlled searching), CINAHL (via EBSCO), Scopus and the Cochrane Library, as well as grey literature, we will systematically search for literature in English, German and Turkish without any publication date restrictions. The titles/abstracts and full texts of the identified records will be independently screened by two reviewers. Data extraction will be performed by one researcher and verified by another. All the authors will discuss the conflicts. We will analyse the identified intersectional determinants of preferences using inductive content analysis.
There are no ethical concerns related to conducting this study. We will share our findings with nursing care practitioners. The results will be presented at conferences and disseminated through peer-reviewed articles and practical publications.
The findings of the study will address the important gaps in knowledge on the complex intersecting factors that influence the preferences of CALDPwD. A key strength of this study is its comprehensive search strategy, which includes multiple databases and citation tracking to capture diverse, intersectional perspectives of CALDPwD. However, excluding the studies focused on caregiver's burden may limit insights into how care systems shape the needs and expectations of this population.
塑造痴呆症患者日常生活的特定偏好是以人为本护理理念的基础。然而，关于文化和语言背景各异的痴呆症患者（CALDPwD）的复杂经历的信息却很匮乏，而这些经历决定了他们多方面的偏好。因此，本范围综述的目的是确定同行评审文献和灰色文献中关于CALDPwD的多层次经历如何影响日常生活偏好的现有证据的范围、程度和性质。
我们旨在进行一项范围综述，以探索CALDPwD的多层次经历及其日常生活偏好的交叉决定因素。我们将使用PubMed、MEDLINE（通过Ovid进行精确和受控搜索）、CINAHL（通过EBSCO）、Scopus和Cochrane图书馆，以及灰色文献，系统地搜索英语、德语和土耳其语的文献，且无任何出版日期限制。两名评审员将独立筛选所识别记录的标题/摘要和全文。数据提取将由一名研究人员进行，并由另一名人员进行核实。所有作者将讨论存在的分歧。我们将使用归纳性内容分析法分析所识别的偏好交叉决定因素。
进行本研究不存在伦理问题。我们将与护理从业者分享我们的研究结果。研究结果将在会议上展示，并通过同行评审文章和实践出版物进行传播。
该研究的结果将填补关于影响CALDPwD偏好的复杂交叉因素的知识空白。本研究的一个关键优势在于其全面的搜索策略，该策略包括多个数据库和引文跟踪以获取CALDPwD的多样、交叉视角。然而，排除关注照顾者负担的研究可能会限制对护理系统如何塑造该人群的需求和期望的深入了解。
