Kuo Yuanchen, Fettig Angel
College of Education, University of Washington Miller Hall, 2012 Skagit Ln, Seattle, WA, 98105, USA.
J Autism Dev Disord. 2025 Aug 20. doi: 10.1007/s10803-025-07004-6.
Families of autistic children often have a lower Family Quality of Life (FQOL) compared to families with neurotypical children due to stressors such as emotional, physical, and financial burdens, as well as social isolation. This study aimed to investigate how parent training programs and family-professional partnerships influence FQOL in families of autistic children. A sample of 406 diverse caregivers who completed a survey about their experiences with parent training, satisfaction with their families' quality of life, and the quality of their partnerships with professionals was analyzed. Regression analysis revealed that contextual fit and family-professional partnerships were positively correlated with higher FQOL scores. Interaction effects showed that the impact of partnerships on FQOL was stronger when caregivers participated in knowledge-focused programs but weaker when they participated in comprehensive programs. These findings highlight the importance of developing contextually appropriate parent training programs, providing necessary information, and fostering strong family-professional partnerships to support FQOL for families of autistic children.
与有神经发育正常孩子的家庭相比，自闭症儿童家庭的家庭生活质量（FQOL）往往较低，原因包括情感、身体和经济负担以及社会隔离等压力因素。本研究旨在调查家长培训项目和家庭与专业人员的合作关系如何影响自闭症儿童家庭的FQOL。对406名不同的照顾者进行了抽样分析，他们完成了一项关于其家长培训经历、对家庭生活质量的满意度以及与专业人员合作关系质量的调查。回归分析表明，情境适配度和家庭与专业人员的合作关系与更高的FQOL得分呈正相关。交互效应表明，当照顾者参加以知识为重点的项目时，合作关系对FQOL的影响更强，而当他们参加综合项目时，影响则较弱。这些发现凸显了制定符合情境的家长培训项目、提供必要信息以及促进牢固的家庭与专业人员合作关系以支持自闭症儿童家庭FQOL的重要性。
